This Mother’s Day, honor someone special – Alzheimer’s – Optimum Senior Care – Chicago In Home Caregivers

This Mother’s Day, honor someone special – Alzheimer’s – Optimum Senior Care – Chicago In Home Caregivers

Today, more than 3 million American women are living with Alzheimer’s. This deadly disease is on the rise, so I’m reaching out to urge you to take advantage of a special opportunity to show your support for those affected by Alzheimer’s in honor of Mother’s Day.
You can make twice the impact in our fight against Alzheimer’s with a donation to our spring matching gift challenge. The Anne and Henry Zarrow Foundation of Tulsa, Oklahoma, has generously pledged $500,000 to the Alzheimer’s Association if we can raise that same amount by June 15. This gift will play a significant role in advancing research initiatives that have the potential to slow the trajectory of Alzheimer’s disease.
During this special matching gift challenge, your donation can go twice as far in our efforts to fund care and support services and critical research efforts.
When you make a generous donation in honor of Mother’s Day, you show your support for the millions of women — and their families — facing this disease. Your gift of $35 can become $70, a gift of $60 can become $120, or your especially generous gift of $120 can become $240.
Any amount you give by June 15 can be matched during our spring matching gift challenge to further our mission to eliminate Alzheimer’s disease through the advancement of research; to provide and enhance care and support for all affected; and to reduce the risk of dementia through the promotion of brain health.
You can bring twice as much help and hope to those living with Alzheimer’s disease.

Crafting for a cause on The Longest Day – Alzheimer’s – Optimum Senior Care – Chicago In Home Caregivers

Crafting for a cause on The Longest Day – Alzheimer’s – Optimum Senior Care – Chicago In Home Caregivers

The Longest Day is a team event to raise funds and awareness for the Alzheimer’s Association. Held annually on the summer solstice, the duration of this sunrise-to-sunset event symbolizes the challenging journey of those living with the disease and their caregivers. In this article, we feature one of our Longest Day participants, Erica Kubena.

Crafting for a cause on The Longest Day

I used to believe that the hardest thing to do was open myself up to other people. The reality of it is that the hardest thing to do is talk about someone you love to other people, especially when that other person is going through one of the hardest fights of their life. My name is Erica Kubena, and while this story is my own, I’d love to share it with you. I have come to realize-there’s a comfort in knowing you are not alone in a seemingly endless journey.

In October 2010, my beautiful mother, Joanne Wieckert, was diagnosed with Alzheimer’s disease at 67. Although, my mom had exhibited some warnings, it never crossed my mind that this fatal disease would be the outcome. I remember I cried when I heard the news – more out of fear of the unknown than anything else. Surprisingly, the biggest comfort I experienced in that moment came from my dad when he said “growing old isn’t for sissies.” I was shocked, but in a sense that was his way of calming me down- telling me that it was time to toughen up. And after my own journey I agree. This disease calls for the toughest people to step up.

My dad took on the responsibilities as my mother’s caregiver. He took care of everything. Whether it was doctor appointments or healthcare issues-he was her support system. I felt we could accomplish anything on this journey together.

In July 2011, three months before my wedding, my dad earned his wings and I was left on this unknown journey without him. I had no idea what I was facing. I knew I needed help and support, but I was not sure who to turn to. After weeks of researching, I almost gave up hope. And that’s when I came across the Alzheimer’s Association.

I am truly grateful by the amount of support and information the Association offered during my time of need. And everything was just at the edge my fingertips! I knew I wanted to increase my involvement in the organization I just didn’t know how. That’s when I came across The Longest Day and Walk to Alzheimer’s. While I dream of one day being strong enough emotionally to participate in the Walk (as my Aunt Wilma started last year), I absolutely fell in love with the idea of raising funds for a cause so close to my heart while doing different activities that I enjoy. The Longest Day is a complete win!

Last year was my first year participating in The Longest Day. Some of my friends joined me and we formed The Purple Winged Warriors. We made paintings and sold mason jars decorated as baseball team jerseys. This year, we are planning on making purple “love” candles in mini mason jars and possibly adding other crafts as time allows.

Raising funds is so critical to the cause of ending this disease. I try to raise funds in honor of everyone who has earned their purple wings already and everyone who is still here, fighting every day. I continue to see on a daily basis what this disease does to families and to the individual – it needs to end. For future generations to not have to know what it’s like to be seen as a complete stranger by someone who raised you, for future generations to not be subjected to watching someone you love shut down physically, for future generations to remember who they are and what they’ve accomplished in their lives. For these reasons and many more, I continue to fight, I continue to raise awareness and funds and I continue to love my sweet mother through this devastating disease. I find comfort in many things that I read over the years, but I will end on the one that sticks out the most: “Love is not a memory – it is a feeling that resides in your heart and your soul.”

I encourage everyone to join my team and all others in raising awareness and raising funds for The Longest Day 2017, because your love is worth it!

Join The Longest Day
Team up with the Alzheimer’s Association, select an activity you love, and plan your event on or around The Longest Day. Sign up today!

Webb tribute concert will also honor country-music legend Campbell – Alzheimer’s – Optimum Senior Care – Chicago In Home Caregivers

Webb tribute concert will also honor country-music legend Campbell –  Alzheimer’s – Optimum Senior Care – Chicago In Home Caregivers

On May 3, a tribute concert of musicians performing the songs of Grammy-winning songwriter Jimmy Webb at Carnegie Hall will also honor Webb’s friend of 50 years, country-music legend Glen Campbell, who’s living with Alzheimer’s disease. Webb talked about watching Campbell’s fight against Alzheimer’s and the importance of music in every person’s life.

This Wednesday, May 3, a tribute concert will be performed at Carnegie Hall in honor of Grammy-winning songwriter, composer and singer Jimmy Webb. Art Garfunkel, Ashley Campbell, Toby Keith, Catherine Zeta-Jones, Marilyn McCoo and Dwight Yoakam are among the artists joining Jimmy onstage to benefit the Alzheimer’s Association and the I’ll Be Me Fund in honor of Jimmy’s friend of 50 years, Glen Campbell. We spoke to Jimmy about the event, his experience watching Glen’s battle with Alzheimer’s and thoughts on the importance of music in every person’s life.

Congratulations on the tribute, Jimmy! Can you tell us what music you’ll be performing or what songs may be featured?

I’m into this event up to my neck and I am happy as I can be! I can’t reveal too much, but I can tell you that the artist or artists most associated with each of my songs will be performing them – and there will be some surprises, too.

I’ll be performing some duets, including “If These Walls Could Speak” with Graham Nash, and I will be playing piano with Art Garfunkel on “All I Do”, which was his No.1 record. Amy Grant, who I absolutely adore, will be joining me on “Adios.”  There is a lot to look forward to.

Proceeds from this tribute will benefit the Alzheimer’s Association. How do you think this event will help raise concern and awareness of Alzheimer’s disease?

I am so proud that the Alzheimer’s Association and the I’ll Be Me Alzheimer’s Fund will be the benefactors of this event.  I never have a moment’s hesitation in giving my personal testimony about what I have witnessed through Glen Campbell’s life and his family’s life since his diagnosis of Alzheimer’s. I never really understood the disease until Glen’s diagnosis; now I hardly think about anything else.

Carnegie Hall is a great touchstone – an American monument, really – and to hold this event there is especially significant, showing that the music community is really active and truly cares about changing the course and effects of this disease. There will be a huge diversity of artists onstage – it won’t be “just country” or “just pop.” We’ve tried to embrace all kinds of people with this event in presenting the event to the public and making it possible for people of more modest means to attend. We want everyone to raise funds and enjoy this event.

Congratulations on your new memoir The Cake and the Rain.” As a member of the Songwriters Hall of Fame, the Nashville Songwriters Hall of Fame and as a Grammy winner, what mark do you think you’ve left on the music scene?

I believe in traditional songwriting – a good core structure, a beautiful melody and lyrics that are accessible to people. I want my music to reach into their hearts and communicate emotions that they perhaps don’t find easy to express, and I hope that it can be a go-between for them to say what they really want to say to the people they love. I can only hope that it helps them when they can’t find the right words or the weight of what they want to communicate.

Music has always been a benign companion of human beings – it’s Cupid. It helps us remember things we didn’t want to forget – we get married to music, we live our lives to music. I am proud that I have created some music in my life and to have left something behind that helps people express themselves in a world where it is sometimes so hard to communicate what we truly want to say.

Why is it personally important for you to raise funds and awareness of Alzheimer’s disease and the people it affects?

I do it for Glen and his family. I think Glen Campbell is the poster child for facing Alzheimer’s with courage. He fought against the disease and said “I’m not done yet!” – and that is a direct quote! Glen has always been an incredibly optimistic man and a fighter in life – funny and positive about most things. It wasn’t a surprise to see him react and fight back against the disease the way he has.

Audiences who came out across the country to see him play his farewell tour came out in droves. I believe his experience became a consciousness-raising moment in history. Even though he was a celebrity, he allowed the public a very personal look into his life through the movie “Glen Campbell: I’ll Be Me”, documenting his fight and his decline and showing people what he and his family were experiencing.

Glen’s family helped demystify Alzheimer’s disease – they took their fear and dissipated it. The family looked at the disease as something they knew they had to face and asked themselves: “What can we do to help? What would we want done for us if we were in that situation?” They were brave and truly inspirational in how they approached the disease in a practical way.

As much as Glen and his family fought back, I personally feel a huge sense of loss. Alzheimer’s has inflicted a tragic loss of talent and energy and potential. The disease hit Glen at a point when he knew more than he would ever know and when he still had so much to contribute within the music community.  Alzheimer’s snuck in the back door and took the records Glen would’ve made and all he still had to share with his family, friends and his audiences. To me, that was a personal tragedy that is still very difficult for me to deal with.

My difficulty, however, in no way compares to the distress and just plain stress –that Alzheimer’s inflicts on the caregivers. Alzheimer’s is full of sorrow and exhaustion, and it has a ripple effect. The person with Alzheimer’s is surrounded by rings of people affected in different ways; sometimes they don’t even know they are being affected! Watching the disease progress in Glen made me put myself in his wife Kim’s shoes. For years now, my own wife Laura and I have asked ourselves and one another the heavy questions. “What would we do in similar circumstances? How would I take care of you? How would you take care of me?” When you are affected on a very close, personal basis, you view life in a different way. And your eyes are wide open.

You’ve long been an inspiration to other songwriters and musicians, and you were a collaborator with Glen on some of his biggest hits, such as “Wichita Lineman.” His recently-announced final album “Adios” will include 12 tracks, featuring songs like “Just like Always.” What has your collaboration over the years meant to you? What emotions do you have in knowing that this will be his last album?

I don’t compare my own loss with that of Glen’s family; it doesn’t compare on any level.  But I do feel like a second-tier casualty of Alzheimer’s disease. It has taken the most accomplished, beautiful, golden voice that was perfectly matched to my songs. It has taken the No. 1 promoter of my music, who also happens to be my best friend of 50 years. Our children grew up together, and it wouldn’t be much of a reach to say that the Campbells and the Webbs are like family.

I can’t put into words the loss I feel over Glen’s journey with this disease. But I can say this: the world needs beauty. The world needs its painters, its singers and its artists. There is something so ugly about this particular man being taken from us in this fashion. It is hard for me to deal with and sometimes I just don’t. Sometimes I am like an oyster covering the sources of my irritation in pearlescent mother-of-pearl; but trying so hard not to think about it is almost like thinking about it.

Once you are touched by Alzheimer’s, your life will never be the same. It seems like a waste of so much energy and talent…and so much LOVE. It’s hard to find any good thing about it, but you try.

Glen found a way to be a living, breathing, fighting example of Alzheimer’s for millions of people. In publicly fighting back, he turned the bad into something good. I can only try to walk in his footprints. He has been so dear to me and my family, and whether you knew it or not, he was probably dear to you, too. He was going to make so much more music that you would’ve loved.

If we work hard enough and raise enough money, we can turn this thing around.  We can end this disease for good. For love, for music – and for those we consider family.

About Jimmy Webb:  Jimmy is a songwriter, composer and singer known worldwide as a master of his trade. Since his first platinum hit “The Worst That Could Happen,” Webb has had numerous hits including “Up, Up and Away,” “By the Time I Get to Phoenix,” “Wichita Lineman,” “Galveston,” “All I Know” and “MacArthur Park,” and has also become a leader and mentor in the industry as a champion for songwriters.  Webb is the only artist ever to have received Grammy Awards for music, lyrics and orchestration. He was also the youngest person ever to be inducted into the Songwriters Hall of Fame and serve as its Chairman. Webb is married to Laura Savini, a producer and host for PBS. He has five sons, one daughter and recently became a grandfather.

Photo Credits: Photo #1: Sandra Gillard/Lightkeepers, Photo #3: Sasa Tkalcan, Photo #4: RockStars and Babies

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Jane Mikita Gneiser’s Reason to Hope –Alzheimer’s – Optimum Senior Care – Chicago In Home Caregivers

Jane Mikita Gneiser’s Reason to Hope  –Alzheimer’s – Optimum Senior Care – Chicago In Home Caregivers

For most Chicago Blackhawk fans, Stan Mikita is a hockey legend. Whether you were impressed by the curved blade, watched his team win the 1961 Stanley Cup finals, or even passed his statue outside the United Center, everyone has a Stan Mikita story. In 2015, the hockey legend was diagnosed with suspected dementia with Lewy bodies. His daughter, Chicago native Jane Mikita Gneiser, shares the story of her family’s journey with dementia.

What were the first signs of the disease?
I would say the first signs were when my dad would start losing his train of thought, or he would forget a word mid-sentence. He was never a “look at me” kind of person, but we noticed he definitely became quieter. In social settings, he had become a bit more withdrawn, which is when I noticed something had changed.

What has been your biggest challenge as a daughter?
I struggled a lot in the very beginning. In 2015, my dad was not doing well and he was declining. I cried a lot, because I could tell my dad was changing dramatically. He repeated questions and his fun and witty expressions appeared less and less. We decided as a family that it would be best if my parents came home to Chicago. They needed to be surrounded by their friends and family. It was devastating to me and my siblings. We all kept our lines of communications open as we knew we had to help and be strong for our mom.

How did you come to be involved with the Alzheimer’s Association?
We actually called the Alzheimer’s Association toll-free number when my dad was diagnosed. The Association was great. We narrowed down our location for in-home health care as well as homes/facilities to care for our dad.

What is your reason to hope?
That one day a cure is found for the disease. I wouldn’t wish this disease on anyone.

What advice would you give to someone who does not know muchabout dementia?
The advice I would give is to read and do your research. This is what my family did, and it helped us a lot. Unfortunately, it is a relatively unknown disease. It seems that more and more people are exhibiting signs of dementia with Lewy bodies. We need to raise awareness and bring attention to this disease to help find a cure.

Purchase a limited edition photo print of the Blackhawks Ambassadors in honor of Stan Mikita or make a donation to Reason to Hope.

Our toolkit can help people living with Alzheimer’s disease plan for care – Optimum Senior Care – Chicago In Home Caregivers

Our toolkit can help people living with Alzheimer’s disease plan for care – Optimum Senior Care – Chicago In Home Caregivers

Following a dementia diagnosis, care planning is crucial to improving outcomes and maintaining quality of life for people living with the disease and their caregivers. The Alzheimer’s Association Cognitive Impairment Care Planning Toolkit for physicians can help control costs and plan for the future.