Living with Alzheimer’s doesn’t mean giving up activities

Living with Alzheimer’s doesn’t mean giving up activities

A person living with Alzheimer’s disease or other dementia doesn’t have to give up the activities that he or she loves. Many activities can be modified to the person’s ability. In addition to enhancing quality of life, activities can reduce behaviors like wandering or agitation.

Activities

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A person with Alzheimer’s or other dementia doesn’t have to give up the activities that he or she loves. Many activities can be modified to the person’s ability. In addition to enhancing quality of life, activities can reduce behaviors like wandering or agitation.

Choosing activities

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In the early stages of dementia, the person may withdraw from activities he or she previously enjoyed. It is important to help the person remain engaged. Having an open discussion around any concerns and making slight adjustments can make a difference. For example, a large social gathering may be overwhelming, but the person may be able to interact more successfully in smaller groups.

As Alzheimer’s progresses, you may need to make other adjustments to the activity. Use the following tips:

  • Keep the person’s skills and abilities in mind.
    A person with dementia may be able to play simple songs learned on the piano years ago. Bring these types of skills into daily activities.
  • Pay special attention to what the person enjoys.
    Take note when the person seems happy, anxious, distracted or irritable. Some people enjoy watching sports, while others may be frightened by the pace or noise.
  • Consider if the person begins activities without direction.
    Does he or she set the table before dinner or sweep the kitchen floor mid-morning? If so, you may wish to plan these activities as part of the daily routine.
  • Be aware of physical problems.
    Does he or she get tired quickly or have difficulty seeing, hearing or performing simple movements?
  • Focus on enjoyment, not achievement.
    Find activities that build on remaining skills and talents. A professional artist might become frustrated over the declining quality of work, but an amateur might enjoy a new opportunity for self expression. For activity ideas join ALZConnected, our message boards and online support community. Every day, caregivers like you share new ideas and encourage one another.
  • Encourage involvement in daily life.
    Activities that help the individual feel like a valued part of the household — like setting the table — can provide a sense of success and accomplishment.
  • Relate to past work life.
    A former office worker might enjoy activities that involve organizing, like putting coins in a holder or making a to-do list. A farmer or gardener may take pleasure in working in the yard.
  • Look for favorites.
    The person who always enjoyed drinking coffee and reading the newspaper may still find these activities enjoyable, even if he or she is not able to completely understand what the newspaper says.
  • Consider time of day.
    Caregivers may find they have more success with certain activities at specific times of day, such as bathing and dressing in the morning.
  • Adjust activities to disease stages.
    As the disease progresses, you may want to introduce more repetitive tasks. Be prepared for the person to eventually take a less active role in activities.

We Can Help

It helps to know you aren’t alone. Talking to others who are going through the same experiences as caregivers can provide you with ideas, support and resources.

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Your approach

If you notice a person’s attention span waning or frustration level increasing, it’s likely time to end or modify the activity.

  • Help get the activity started.
    Most people with dementia still have the energy and desire to do things but may lack the ability to organize, plan, initiate and successfully complete the task.
  • Offer support and supervision.
    You may need to show the person how to perform the activity and provide simple, easy-to-follow steps.
  • Concentrate on the process, not the result.
    Does it matter if the towels are folded properly? Not really. What matters is that you were able to spend time together, and that the person feels as if he or she has done something useful.
  • Be flexible.
    When the person insists that he or she doesn’t want to do something, it may be because he or she can’t do it or fears doing it. Don’t force it. If the person insists on doing it a different way, let it happen, and change it later if necessary.
  • Assist with difficult parts of the task.
    If you’re cooking, and the person can’t measure the ingredients, finish the measuring and say, “Would you please stir this for me?”
  • Let the individual know he or she is needed.
    Ask, “Could you please help me?” Be careful, however, not to place too many demands upon the person.

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  • Stress a sense of purpose.
    If you ask the person to make a card, he or she may not respond. But, if you say that you’re sending a special get-well card to a friend and invite him or her to join you, the person may enjoy working on this task with you.
  • Don’t criticize or correct the person.
    If the person enjoys a harmless activity, even if it seems insignificant or meaningless to you, encourage the person to continue.
  • Encourage self expression.
    Include activities that allow the person a chance for expression. These types of activities could include painting, drawing, music or conversation.
  • Involve the person through conversation.
    While you’re polishing shoes, washing the car or cooking dinner, talk to the person about what you’re doing. Even if the person cannot respond, he or she is likely to benefit from your communication.
  • Substitute an activity for a behavior.
    If a person with dementia rubs his or her hand on a table, provide a cloth and encourage the person to wipe the table. Or, if the person is moving his or her feet on the floor, play some music so the person can tap to the beat.
  • Try again later.
    If something isn’t working, it may just be the wrong time of day or the activity may be too complicated. Try again later, or adapt the activity.

African-Americans are at a higher risk of developing Alzheimer’s

African-Americans are at a higher risk of developing Alzheimer’s

Many Americans dismiss the warning signs of Alzheimer’s, believing that these symptoms are a normal part of aging. This is of even greater concern for African-Americans, who have an increased risk of developing the disease. Visit our African-Americans and Alzheimer’s website for information on warning signs, research and care.

African-Americans are at a higher risk for Alzheimer’s disease.

Many Americans dismiss the warning signs of Alzheimer’s, believing that these symptoms are a normal part of aging. This is of even greater concern for African-Americans, who are two times more likely to develop late-onset Alzheimer’s disease than whites and less likely to have a diagnosis of their condition, resulting in less time for treatment and planning. By working together, we hope to reduce the risk factors and reverse the growing trend of Alzheimer’s disease among African-Americans. Sign up for our e-newsletter and get the latest info on treatments, research and care.


  • 10 Warning Signs

    Your memory often changes as you grow older. But memory loss that disrupts daily life is not a typical part of aging.
    > Learn More

  • A Caregiver’s Story

    Caregiver Wanda Young describes the benefits and importance of participating in clinical trials.
    > Learn More

  • Brain Health

    Researchers have identified factors that signal a greater risk, including high blood pressure, high cholesterol, lack of exercise and diabetes.
    > Learn More

  • Leading the Way

    Solomon Carter Fuller, M.D., was one of the first known black psychiatrists and worked alongside Dr. Alois Alzheimer.
    > Learn More


Partnerships

The Alzheimer’s Association is proud to partner with Alpha Kappa Alpha Sorority, Inc.® (AKA) to help raise awareness about Alzheimer’s disease and increase education, care and support resources in the African-American community. This national partnership will engage both campus and alumni members of AKA through local community outreach efforts and participation in The Longest Day®, a team event to raise funds and awareness for the Alzheimer’s Association that takes place annually on the summer solstice.

Watch the AKA/Alzheimer’s Association partnership video >


Additional Resources

Calling all artists! – Alzheimer’s

Calling all artists! – Alzheimer’s

Each year, 50 talented artists are selected to paint at Unforgettable Art: An Affair for Alzheimer’s, and you could be one of them! Unforgettable Art invites guests to enjoy hors d’oeuvres, drinks and music while they watch artists convert blank canvases into wonderful works of art. The evening then concludes with a live auction of all artwork. Help us create a world without Alzheimer’s by applying to be an artist at Unforgettable Art!

Bilingual people may have an edge against Alzheimer’s disease

Bilingual people may have an edge against Alzheimer’s disease

People with Alzheimer’s who speak (or spoke) two or more languages scored better on memory tests than those who only mastered one language, new research suggests. The scientists added that people who were bilingual appeared to have better functional connectivity in frontal brain regions, which allowed them to maintain better thinking despite having Alzheimer’s. Heather Snyder, Ph.D., Alzheimer’s Association senior director of medical and scientific operations, said the results make sense given what is known about the aging brain but that further research of this type is necessary before any conclusions can be drawn.