Do what you love! – Alzheimer’s disease

Do what you love! – Alzheimer’s disease
There are many ways to put your passion to work in the fight against Alzheimer’s disease. And as you’ll see in this video, that’s what makes The Longest Day® 2016 so special!
The Longest Day is unlike any other event. It’s your opportunity to have fun doing what you love — to honor those you love — who have been affected by Alzheimer’s.
Sign up today, and on Monday, June 20, you and your team can spend the first day of summer doing whatever you want. You can bowl. Shoot hoops. Play bridge. Bake. Garden. Dance.
What you do is up to you! And whatever you do will raise funds and awareness to advance the care, support and research efforts of the Alzheimer’s Association
Watch the video, and sign up to do what you love to honor people living with Alzheimer’s and their caregivers on The Longest Day.
Sincerely,
Wendy Moran
The Longest Day Team
P.S. The Longest Day 2016 is an opportunity to put your personal touch on the fight against Alzheimer’s. Watch the video now to see what past teams have done, and sign up to be part of something special!

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Download the Caregiver Buddy App

Download the Caregiver Buddy App

Caregiver Buddy is a free App that is a quick and easy way for caregivers to get “in the moment” tips and tricks while caring for someone with memory loss. Caregiver Buddy focuses on providing support for the caregiver in areas of daily routine, communication, behaviors, activities of daily living. It also provides live help 24 hours a day by clicking and calling the Alzheimer’s Association 24 hour helpline. Available in either Android or iPhone versions.

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Music and art can enrich the lives of people with Alzheimer’s disease

Music and art can enrich the lives of people with Alzheimer’s disease

Music and art allow for self-expression and engagement, even after Alzheimer’s or another dementia has progressed. Studies have shown music may reduce agitation and improve behavioral issues common in the middle-stages of the disease, and art can provide an opportunity for self-expression.

Music and art can enrich the lives of people with Alzheimer’s disease. Both allow for self-expression and engagement, even after dementia has progressed.

Music

From our Blog

Caregivers Take Note – Music
as Therapy

Although music has been with us since the dawn of time, in the last few decades studies have found that music as a therapeutic tool can increase cognitive function in Alzheimer’s patients … read more.

Music can be powerful. Studies have shown music may reduce agitation and improve behavioral issues that are common in the middle-stages of the disease. Even in the late-stages of Alzheimer’s, a person may be able to tap a beat or sing lyrics to a song from childhood. Music provides a way to connect, even after verbal communication has become difficult.

Use these tips when selecting music for a person with dementia:

  • Identify music that’s familiar and enjoyable to the person. If possible, let the person choose the music.
  • Choose a source of music that isn’t interrupted by commercials, which can cause confusion.  
  • Use music to create the mood you want. For example, a tranquil piece of music can help create a calm environment, while a faster paced song from someone’s childhood may boost spirit and evoke happy memories.
  • Encourage movement (clapping, dancing) to add to the enjoyment.
  • Avoid sensory overload; eliminate competing noises by shutting windows and doors and by turning off the television. Make sure the volume of the music is not too loud.

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Art

Map out a plan to approach Alzheimer’s

Go to our free online tool,Alzheimer’s Navigator and complete a series of short surveys to receive a customized action plan.
Learn more:
Alzheimer’s Navigator

Art projects can create a sense of accomplishment and purpose. They can provide the person with dementia — as well as caregivers — an opportunity for self-expression.
When planning an art activity for someone with middle- to late-stage Alzheimer’s, keep these tips in mind:

  • Keep the project on an adult level. Avoid anything that might be demeaning or seem child-like.
  • Build conversation into the project. Provide encouragement, discuss what the person is creating or reminiscence.
  • Help the person begin the activity. If the person is painting, you may need to start the brush movement. Most other projects should only require basic instruction and assistance.
  • Use safe materials. Avoid toxic substances and sharp tools.
  • Allow plenty of time, keeping in mind that the person doesn’t have to finish the project in one sitting.

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Become an Alzheimer’s Association Community Representative (AACR)

Become an Alzheimer’s Association Community Representative (AACR)

AACRs assist the Alzheimer’s Association volunteer team in meeting the community needs by representing the Alzheimer’s Association at health and wellness fairs. Become an AACR and join us in our fight against Alzheimer’s disease!

Become an Alzheimer’s Association Community Representative

What is an Alzheimer’s Association Community Representative (AACR)?
AACRs assist the Alzheimer’s Association volunteer team in meeting the community needs by representing the Alzheimer’s Association at health and wellness fairs.

Become an AACR and join us in our fight against Alzheimer’s disease!

AACR Qualifications
AACRs must be organized, energetic, comfortable with public speaking and enjoy interacting with others. AACRs need not have professional experience in dementia care, though some personal experience is preferable.

Above all, AACRs must keep in mind that while serving in this role, they are representing the Alzheimer’s Association and no other organization. To avoid issues of conflict of interest, AACRs may not work in organizations or programs that are potential Association referral sources.

How can I become an AACR?
Visit alz.org/illinois and click on “Volunteer.” Create a volunteer profile and select “Alzheimer’s Association Community Rep.” You will need to provide two references: one personal and one educational/professional.

What are the AACR’s responsibilities?
• Keeping up to date on Alzheimer’s Association news, programs and events
• Attending a minimum of four health and wellness fairs per year

What can the AACR expect from the Alzheimer’s Association?
• A thorough, initial training/orientation
• Materials to support AACR activities
• Opportunities to attend education programs (i.e., webinars, audio conferences and face-to-face)

About Us
The Alzheimer’s Association, Greater Illinois Chapter, serves 68 counties in Illinois with offices in Bloomington, Carbondale, Chicago, Joliet, Rockford and Springfield. Since 1980, the Chapter has provided reliable information and care consultation; created supportive services for families; increased funding for dementia research; and influenced public policy changes. Today, the Greater Illinois Chapter serves the more than half-million Illinoisans affected by Alzheimer’s disease who are in our chapter area, including 210,000 people with the disease plus family.

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Nutritious meals may become a challenge for people with dementia

Nutritious meals may become a challenge for people with dementia

As a person’s cognitive function declines, he or she may become overwhelmed with too many food choices, forget to eat or have difficulty with eating utensils. Proper nutrition is important to keep the body strong and healthy. For a person with Alzheimer’s or dementia, poor nutrition may increase behavioral symptoms and cause weight loss.

Regular, nutritious meals may become a challenge for people with dementia. As a person’s cognitive function declines, he or she may become overwhelmed with too many food choices, forget to eat or have difficulty with eating utensils.

Nutrition tips

From our Blog

Cooking with Alzheimer’s
Award-winning cookbook author Paula Wolfert talks about food, family, and cooking after an Alzheimer’s diagnosis.Read more.

Proper nutrition is important to keep the body strong and healthy. For a person with Alzheimer’s or dementia, poor nutrition may increase behavioral symptoms and cause weight loss.

The basic nutrition tips below can help boost the person with dementia’s health and your health as a caregiver, too.

  • Provide a balanced diet with a variety of foods.
    Offer vegetables, fruits, whole grains, low-fat dairy products and lean protein foods.
  • Limit foods with high saturated fat and cholesterol.
    Some fat is essential for health — but not all fats are equal. Go light on fats that are bad for heart health, such as butter, solid shortening, lard and fatty cuts of meats.
  • Cut down on refined sugars.
    Often found in processed foods, refined sugars contain calories but lack vitamins, minerals and fiber. You can tame a sweet tooth with healthier options like fruit or juice-sweetened baked goods. But note that in the later-stages of Alzheimer’s, if loss of appetite is a problem, adding sugar to foods may encourage eating.
  • Limit foods with high sodium and use less salt.
    Most people in the United States consume too much sodium, which affects blood pressure. Cut down by using spices or herbs to season food as an alternative.

People with Alzheimer’s or dementia do not need a special diet. As with anyone, eating a well-balanced, nutritious diet is important for overall health.

As the disease progresses, loss of appetite and weight loss may become concerns. In such cases, the doctor may suggest supplements between meals to add calories.

Staying hydrated may be a problem as well. Encourage fluids by offering small cups of water or other liquids throughout the day or foods with high water content, such as fruit, soups, milkshakes and smoothies.

Possible Causes of Poor Appetite

  • Not recognizing food. The person may no longer recognize the foods you put on his or her plate.
  • Poor fitting dentures. Eating may be painful, but the person may not be able to tell you this. Make sure dentures fit and visit the dentist regularly.
  • Medications. New medications or a dosage change may affect appetite. If you notice a change, call the doctor.
  • Not enough exercise. Lack of physical activity will decrease appetite. Encourage simple exercise, such as going for a walk, gardening or washing dishes.  
  • Decreased sense of smell and taste. The person with dementia may not eat because food may not smell or taste as good as it once did.
Make mealtimes easier

Caregiver Stress Check

Alzheimer caregivers frequently report high levels of stress. Take our quiz and get resources to help.

During the middle and late stages of Alzheimer’s, distractions, too many choices, and changes in perception, taste and smell can make eating more difficult. The following tips can help:

  • Limit distractions.
    Serve meals in quiet surroundings, away from the television and other distractions.
  • Keep the table setting simple.
    Avoid placing items on the table — such as table arrangements or plastic fruit — that might distract or confuse the person. Use only the utensils needed for the meal.
  • Distinguish food from the plate.
    Changes in visual and spatial abilities may make it tough for someone with dementia to distinguish food from the plate or the plate from the table. It can help to use white plates or bowls with a contrasting color placemat. Avoid patterned dishes, tablecloths and placemats.
  • Check the food temperature.
    A person with dementia might not be able to tell if something is too hot to eat or drink. Always test the temperature of foods and beverages before serving.
  • Serve only one or two foods at a time.
    Too many foods at once may be overwhelming. Simplify by serving one dish at a time. For example, mashed potatoes followed by meat.
  • Be flexible to food preferences.
    Keep long-standing personal preferences in mind when preparing food, and be aware that a person with dementia may suddenly develop new food preferences or reject foods that were liked in the past.
  • Give the person plenty of time to eat.
    Remind him or her to chew and swallow carefully. Keep in mind that it may take an hour or longer to finish eating.
  • Eat together.
    Make meals an enjoyable social event so everyone looks forward to the experience. Research suggests that people eat better when they are in the company of others.
  • Keep in mind the person may not remember when or if he or she ate.
    If the person continues to ask about eating breakfast, consider serving several breakfasts — juice, followed by toast, followed by cereal.

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Encourage independence

Map out a plan to approach Alzheimer’s

There are many questions you’ll need to answer as you plan for the future. UseAlzheimer’s Navigator – our free online tool – to guide you as you map out your plan.
Learn more:
Alzheimer’s Navigator

During the middle and late stages of Alzheimer’s, allow the person with dementia to be as independent as possible during meals. Be ready to help, when needed.

  • Make the most of the person’s abilities.
    Adapt serving dishes and utensils to make eating easier. You might serve food in a bowl instead of a plate, or try using a plate with rims or protective edges. A spoon with a large handle may be less difficult to handle than a fork, or even let the person use his or her hands if it’s easier.
  • Serve finger foods.
    Try bite-sized foods that are easy to pick up, such as chicken nuggets, fish sticks, tuna sandwiches, orange segments, steamed broccoli or cauliflower pieces.
  • Use a “watch me” technique.
    For example, hold a spoon and show the person how to eat a bowl of cereal.
  • Don’t worry about neatness.
    Let the person feed himself of herself as much as possible. Consider getting plates with suction cups and no-spill glasses.
Minimize eating and nutrition problems

In the middle and late stages of Alzheimer’s, swallowing problems can lead to choking and weight loss. Be aware of safety concerns and try these tips:

  • Prepare foods so they aren’t hard to chew or swallow.
    Grind foods, cut them into bite-size pieces or serve soft foods (applesauce, cottage cheese scrambled eggs).
  • Be alert for signs of choking.
    Avoid foods that are difficult to chew thoroughly, like raw carrots. Encourage the person to sit up straight with his or her head slightly forward. If the person’s head tilts backward, move it to a forward position. At the end of the meal, check the person’s mouth to make sure food has been swallowed. Learn the Heimlich maneuver in case of an emergency.
  • Address a decreased appetite.
    If the person has a decreased appetite, try preparing favorite foods, increase physical activity, or plan for several small meals rather than three large ones. If the person’s appetite does not increase and/or he or she is losing weight, consult with the doctor. Keep in mind, as the person’s activity level decreases, he or she may not need as many calories.
  • Only use vitamin supplements on the recommendation of a physician.

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