Download our Caregiver Buddy App today

Download our Caregiver Buddy App today

Caregiver Buddy is a free app with quick and easy access to tips and tricks for caregivers in many areas including: daily routine, communication, behaviors, and activities of daily living. This app, developed by the Greater Illinois Chapter, also offers countless resources from throughout the country.

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The holiday season can be challenging for families living with Alzheimer’s disease

The holiday season can be challenging for families living with Alzheimer’s disease

The holidays are a time when family and friends often come together. But for families living with Alzheimer’s and other dementias, the holidays can be challenging. With some planning and adjusted expectations, holiday celebrations can be happy occasions.

The holidays are a time when family and friends often come together. But for families living with Alzheimer’s and other dementias, the holidays can be challenging. Take a deep breath. With some planning and adjusted expectations, your celebrations can still be happy, memorable occasions.


Familiarize others with the situation

The holidays are full of emotions, so it can help to let guests know what to expect before they arrive. 

If the person is in the early stages of Alzheimer’s, relatives and friends might not notice any changes. But the person with dementia may have trouble following conversation or tend to repeat him- or herself.  Family can help with communication by being patient, not interrupting or correcting, and giving the person time to finish his or her thoughts.

If the person is in the middle or late stages of Alzheimer’s, there may be significant changes in cognitive abilities since the last time an out-of-town friend or relative has visited.  These changes can be hard to accept. Make sure visitors understand that changes in behavior and memory are caused by the disease and not the person.   

You may find this easier to share changes in a letter or email that can be sent to multiple recipients. Here are some examples:

>> “I’m writing to let you know how things are going at our house. While we’re looking forward to your visit, we thought it might be helpful if you understood our current situation before you arrive.
>> “You may notice that ___ has changed since you last saw him/her. Among the changes you may notice are ___.
>> “Because ___ sometimes has problems remembering and thinking clearly, his/her behavior is a little unpredictable.
>> “Please understand that ___ may not remember who you are and may confuse you with someone else. Please don’t feel offended by this. He/she appreciates your being with us and so do I.”

For more ideas on how to let others know about changes in your loved one, join ALZConnected, our online support community where caregivers like you share tips on what has worked for them.

Adjust expectations

From our Blog
The Gift of Perspective
The stress of caregiving layered with holiday traditions can take a toll … read more.

  • Call a meeting to discuss upcoming plans.
    The stress of caregiving responsibilities layered with holiday traditions can take a toll. Invite family and friends to a face-to-face meeting, or if geography is an obstacle, set up a telephone conference call. Make sure everyone understands your caregiving situation and has realistic expectations about what you can do. Be honest about any limitations or needs, such as keeping a daily routine.
  • Be good to yourself.
    Give yourself permission to do only what you can reasonably manage. If you’ve always invited 15 to 20 people to your home, consider paring it down to a few guests for a simple meal. Let others contribute. Have a potluck dinner or ask them to host at their home. You also may want to consider breaking large gatherings up into smaller visits of two or three people at a time to keep the person with Alzheimer’s and yourself from getting overtired.
  • Do a variation on a theme.
    If evening confusion and agitation are a problem, consider changing a holiday dinner into a holiday lunch or brunch. If you do keep the celebration at night, keep the room well-lit and try to avoid any known triggers.
Involve the person with dementia
  • Build on past traditions and memories.
    Focus on activities that are meaningful to the person with dementia. Your family member may find comfort in singing old holiday songs or looking through old photo albums.
  • Involve the person in holiday preparation.
    As the person’s abilities allow, invite him or her to help you prepare food, wrap packages, help decorate or set the table. This could be as simple as having the person measure an ingredient or hand decorations to you as you put them up. (Be careful with decoration choices. Blinking lights may confuse or scare a person with dementia, and decorations that look like food could be mistaken as edible.) 
  • Maintain a normal routine.
    Sticking to the person’s normal routine will help keep the holidays from becoming disruptive or confusing. Plan time for breaks and rest.

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Adapt gift giving

Reduce post-holiday stress.

Arrange for respite care so you can enjoy a movie or lunch with a friend.

  • Encourage safe and useful gifts for the person with dementia.
    Diminishing capacity may make some gifts unusable or even dangerous to a person with dementia. If someone asks for gift ideas, suggest items the person with dementia needs or can easily enjoy. Ideas include: an identification bracelet (available through MedicAlert® + Alzheimer’s Association Safe Return®), comfortable clothing, audiotapes of favorite music, videos and photo albums.
  • Put respite care on your wish list.
    If friends or family ask what you want for a gift, suggest a gift certificate or something that will help you take care of yourself as you care for your loved one. This could be a cleaning or household chore service, an offer to provide respite care, or something that provides you with a bit of rest and relaxation.
When the person lives in a care facility

A holiday is still a holiday whether it is celebrated at home or at a care facility. Here are some ways to celebrate together:

  • Consider joining your loved one in any facility-planned holiday activities
  • Bring a favorite holiday food to share
  • Sing holiday songs and ask if other residents can join in
  • Read a favorite holiday story or poem out loud

We Can Help

Do you have questions or concerns about your loved one’s changing behavior? The Alzheimer’s Association is here to help.

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Greater Illinois Chapter magazine – Alzheimer’s disease

Greater Illinois Chapter magazine

Read about some of the latest advances in Alzheimer’s disease research and highlights highlights from our International Conference in our annual research issue of Impact, the Greater Illinois Chapter magazine.

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Alzheimer’s disease researchers hopeful that treatments can save lives, costs

Alzheimer’s disease researchers hopeful that treatments can save lives, costs

Leading Alzheimer’s researchers are optimistic that treatments to slow or halt the symptoms of the disease may be on the horizon. The direct cost to the U.S. economy of caring for people with Alzheimer’s is a staggering $226 billion, with half being borne by Medicare. Delaying the onset of the disease by just five years could significantly decrease Medicare spending.

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Memorable Meals – Alzheimer’s Association

Memorable Meals – Alzheimer’s Association

Because the best memories are made around the table.
Memorable Meals is a campaign to spread awareness and raise funds for those affected by Alzheimer’s disease simply by indulging in something you do every day…eating!
Join local restaurants in this delectable campaign benefiting the Alzheimer’s Association, Greater Illinois Chapter.

Memorable Meals

Because the best memories are made around the table.

Memorable Meals is a campaign to spread awareness and raise funds for those affected by Alzheimer’s disease simply by indulging in something you do every day…eating!

Join local restaurants in this delectable campaign benefiting the Alzheimer’s Association, Greater Illinois Chapter. Each restaurant has chosen a specific day to participate or picked an item from their menu and are donating a percentage of sales back to the Greater Illinois Chapter.

Alzheimer’s disease is the sixth leading cause of death in the United States and currently there is no way to prevent, treat or cure it. These restaurants are fighting back by spreading awareness and raising funds for research, care, support and advocacy in our community.

Together, we can turn the tables on Alzheimer’s!

Spread the word! Check in to our restaurant on social media and use #MemorableMeals, #86ALZ and #ENDALZ

Don’t see your favorite restaurant on the list? Let us know where you like to dine so we can get them involved! Contact Bethany Moore at 847-779-6952 or bmoore1@alz.org.

November is National Family & Cargivers Month! Take a night off from cooking and dine out!

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