This Thanksgiving, we are thankful for you – Alzheimer’s disease

This Thanksgiving, we are thankful for you – Alzheimer’s disease

 

This holiday season, we wanted to take a moment and express our gratitude for you. We know you lead a busy life and yet you still find the time to support the Alzheimer’s Association.
Your generosity ensures that we are able to spend each day providing help and hope to individuals affected by Alzheimer’s disease and other dementias. And because of you, we are able to continue our work to accelerate research toward treatment, prevention and, ultimately, a cure.
This holiday season, we hope you have the opportunity to spend time with those who matter most.

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Medicare Part D – Alzheimer’s

Medicare Part D – Alzheimer’s

As you and your family review options for Medicare Part D prior to the Dec. 7, 2014 enrollment deadline, please consider coverage of any drugs related to Alzheimer’s disease or other dementias.
Of particular note is a change to the availability of the Alzheimer’s drug Namenda. The company that produces Namenda will cease production of one version of Namenda (Namenda IR tablets, usually taken twice per day) in January 2015.
While supplies of Namenda IR may be available at local pharmacies for a period of time after the company stops distribution in January, it is anticipated that individuals on this prescription will have to switch to another version of Namenda (XR = extended release once per day capsules). In addition, it is our understanding that a generic version of Namenda IR may be available as early as mid-2015; however, an official date has not been shared.
As with any prescription change, please have a conversation with your physician regarding options and next steps for you or your family members.
For more information regarding Medicare Part D, please visit our website.

If the person with dementia has Medicare, then he or she can enroll in Medicare’s Part D prescription drug plan. Be sure to review Medicare Part D plans carefully regarding Alzheimer’s drug coverage.


Part D basics

See which Medicare national plans cover Alzheimer’s drugs, and which plans require prior approval.

2015 prescription drug plan chart (PDF)

Medicare works with insurers and other private companies to offer different prescription drug plans that vary in cost and drug formularies. During the Medicare Part D annual open enrollment period, Medicare beneficiaries can enroll in a drug plan. Beneficiaries already enrolled in a Part D drug plan can change to a different plan during this period. The enrollment period is from October 15 – December 7, 2014.

Key things to consider when choosing a drug plan:

  • Will the drug plan pay for all or most of the drugs you take now?
  • Are your Alzheimer’s drugs on the formulary? Check the 2015 prescription drug plan chart (PDF).
  • Does the plan cover the doses of the drugs that you take?
  • Do the plan’s rules limit coverage of your Alzheimer’s drugs and/or your more costly drugs by requiring “prior approval”? Check the 2015 prescription drug plan chart (PDF).
  • Do the plan’s rules require you to try a less expensive, similar drug (“step therapy”) before the plan will pay for your drug(s)?
  • Are there limits on the number of pills that a prescription may cover (“quantity limits”) over a specific period of time?
  • What will the plan cost you? Be sure to compare all of the costs for each plan, including the deductible, copayments and co-insurance, not just the amount of the monthly premiums.
  • Is my local pharmacy in the plan’s pharmacy network? If you prefer to use mail order for your drugs, does the plan offer it as an option?

LEARN MORE:
Things to Consider when Choosing a Medicare Drug Plan (PDF)

Important notes about drug coverage and availability

Closing the “donut hole” for seniors
The “coverage gap” or “donut hole” is a certain point ($2,960 in 2015) when Medicare stops paying part of the costs of beneficiaries’ prescription drugs, requiring them to pay the full cost themselves. This gap will be phased out by 2020.

In 2015, you will pay 45% of the plan’s cost for covered brand-name prescription drugs once you reach the gap. What you pay for generic drugs during the gap will decrease each year until it reaches 25% in 2020. In 2015, you will pay 65% of the price.

Brand name medications and quantity limits
Nearly all national plans have stopped paying for brand name cholinesterase inhibitors, the class of drugs most commonly prescribed for Alzheimer’s. This includes all forms of Aricept and Razadyne, and Exelon tablets, capsules and solution. Most plans will pay for Exelon patches and generic cholinesterase inhibitors. Most plans also have imposed Quantity Limits (QL) on Alzheimer’s drugs. Quantity limits restricts the number of pills an individual can receive over the course of a period of time, usually a standard 30-day supply.

Namenda IR Availability
As of January 2015 the company that produces Namenda will cease production of one version of Namenda (Namenda IR tablets, usually taken twice per day) and it will no longer be available. While supplies of Namenda IR may be available at local pharmacies for a period of time after the company stops distributing it in January, it is anticipated that individuals on this prescription will have to switch to another version of Namenda (XR = extended release once per day capsules). In addition, it is our understanding that a generic version of Namenda IR may be available as early as mid-2015; however, an official date has not been shared and it is not currently listed on the Medicare Part D formularies.

Re-assignment for Medicare-Medicaid and “extra help” enrollees

Medicare beneficiaries who receive “extra help” or who receive Medicaid benefits were sent letters from the Centers for Medicare & Medicaid Services (CMS) regarding their current plan.

If you received a blue letter: A blue letter means the beneficiary’s plan is either: 1) leaving the Medicare program in 2015 or 2) charging a higher premium in 2015. CMS will automatically reassign the beneficiary to a new Medicare drug plan for the coming year unless the individual selects a new plan.

Get help with enrollment.

State Health Insurance Assistance Programs (SHIP) provides free one-on-one help with Medicare drug coverage and enrollment questions. Go to SHIPtalk to find out a program in your area.

If you received a tan letter: A tan letter means the beneficiary qualified for “extra help” but joined a plan on their own or switched to a different drug plan than the one Medicare enrolled the beneficiary in. If the beneficiary chooses to stay in the current plan, the tan letter will inform the person that he or she is responsible for the difference between the monthly plan premium and the subsidy (“extra help”). CMS will not automatically reassign the beneficiary to the new plan

Extra help paying for prescription drugs

People with Medicare who have limited income and resources may qualify for extra help paying for prescription drugs. The Social Security Administration (SSA) and CMS are working together to provide this extra assistance.

  • People with both Medicare and Medicaid (called “dual eligibles”) will automatically qualify for extra help.
  • Other individuals may apply for extra help from the SSA. Apply online at www.socialsecurity.gov, or call 800.772.1213 for a paper application or to make an appointment.

Help Is Available

AARP Doughnut Hole Calculator helps those with Medicare Part D to find out if they are at risk in falling into the coverage gap or “doughnut hole.” This online tool may also help you reduce prescription drug costs.

BenefitsCheckUp, a free service of the National Council on Aging (NCOA), helps you find state, federal and private benefits programs available where you live. These benefits programs can help pay for prescriptions, health care, food, utilities and more.

Medicare Access for Patients-Rx (MAPRx) provides a PDF with an explanation of the Part D benefit.

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Give thanks and fight Alzheimer’s disease

Give thanks and fight Alzheimer’s disease

Thanksgiving is a time to count our blessings and reflect on what we cherish most: family, friends, health and happiness. I’m very thankful for the generosity of the many friends who support our work, like a San Francisco foundation, which chooses to remain anonymous, that will donate $170,000 to research programs if we raise that same amount online by December 15.
Their pledge means that your gift of $50 can be worth $100, and $100 could equal $200 – any amount you give by December 15 could be worth twice as much in the fight against Alzheimer’s disease and other dementias.

For millions of Americans whose lives have been touched by Alzheimer’s, the holidays can be tinged with sadness. This devastating disease robs people of their memories, their independence and ultimately, their lives. For friends and family, it means heartbreaking decisions about care as the person’s mind slowly slips away.
Your gift will help to advance research to end Alzheimer’s and dementia while enhancing care and support for those who are living with the disease. Reaching our vision of a world without Alzheimer’s disease – wouldn’t that be something to be thankful for? Please give as generously as you can by December 15. Thank you.

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Special giving opportunity ends soon – Alzheimer’s Association

Special giving opportunity ends soon – Alzheimer’s Association

We just received a $170,000 online-only matching gift opportunitythat I wanted to share with you right away.
Thanks to the generosity of a San Francisco foundation that wishes to remain anonymous, your gift could have twice the impact. Make your gift before December 15, and $50 can be worth $100, and $100 could equal $200.
Any amount you give could be twice as powerful in the fight
against Alzheimer’s disease, but only if we raise an equal amount by December 15.
Help us realize this significant matching opportunity by making your gift today.
This foundation, recognizing the leadership of the Alzheimer’s Association, is donating to help advance our research programs toward methods of treatment, prevention and, ultimately, a cure. We need your help to meet this match by December 15! Your generous gift will help move our mission efforts of care, support and research forward – but we only have a short amount of time. Please give as generously as you can today.

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Alzheimer’s caregivers also need to take care of themselves

Alzheimer’s caregivers also need to take care of themselves

As a caregiver for someone with Alzheimer’s disease, you may find yourself with so many responsibilities that you neglect taking good care of yourself. But the best thing you can do for the person you’re caring for is to stay physically and emotionally strong.

As a caregiver, you may find yourself with so many responsibilities that you neglect taking good care of yourself. But the best thing you can do for the person you are caring for is stay physically and emotionally strong. Here’s how:


See the doctor

Trying to do everything by yourself will leave you exhausted. Don’t do it alone. Seek support from family, friends, your faith community and the Alzheimer’s Association.
Find your local chapter.

Be sure to visit your physician regularly (at least annually), and listen to what your body is telling you. Any exhaustion, stress, sleeplessness, or changes in appetite or behavior should be taken seriously. Ignoring these symptoms can cause your physical and mental health to decline.

If you are caring for someone in the late-stages of Alzheimer’s, talk to your health care provider about the seasonal flu shot. Being vaccinated protects both you and the person you are caring for.

LEARN MORE:
Caregiver DepressionStress ManagementLate-State Care: Infections

Get moving

No doubt you know that exercise is an important part of staying healthy — it can help relieve stress, prevent disease and make you feel good. But finding the time to exercise is another story.

Use these tips:

  • Take friends and family members up on their offers to help.
    You can get in a good workout in a short amount of time — even a 30 minute break. Use our Care Team Calendar to help coordinate a schedule where you have breaks to exercise and take care of your health.
  • Start small.
    While it is recommended that you get 30 minutes of physical activity at least five days a week, even 10 minutes a day can help. Fit in what you can, and work toward a goal.
  • Exercise at home.
    When the person with dementia naps, pull out a yoga mat and stretch, set up a stationary bike, or try exercise tapes.
  • Find something you love.
    If you enjoy the activity, it will be easier to make it a habit.

There also are many ways you can be active with the person with dementia. Here are a few ideas:

  • Take a walk together outside to enjoy the fresh air
  • Go to the mall and take a stroll indoors
  • Do seated exercises at home
  • Dance together to favorite music
  • Garden or do other routine activities that you both enjoy
Eat well

Heart-healthy eating patterns, such as the Mediterranean diet, are good for overall health and may help protect the brain. A Mediterranean diet includes relatively little red meat and emphasizes whole grains, fruits, vegetables, fish, nuts, olive oil and other healthy fats. Try new recipes and involve the person with dementia.

Need ideas on how to go healthy?
Try these resources:

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Five tips to help you cope

Caregiver Stress Check

Alzheimer caregivers frequently report high levels of stress. Take our quiz and get resources to help.

  • Manage your level of stress.
    Consider how stress affects your body (stomach aches, high blood pressure) — and your emotions (overeating, irritability). Find ways to relax. Learn more.
  • Be realistic.
    The care you give does make a difference, but many behaviors can’t be controlled. Grieve the losses, focus on positive times as they arise, and enjoy good memories.
  • Give yourself credit, not guilt.
    It’s normal to lose patience or feel like your care may fall short sometimes. You’re doing the best you can. For support and encouragement, join ALZConnected, our online caregiver community.
  • Take a break.
    It’s normal to need a break from caregiving duties. No one can do it all by themselves. Look into respite care to allow time to take care of yourself.
  • Accept changes.
    Eventually your loved one will need more intensive kinds of care. Research care options now so you are ready for the changes as they occur.

We Can Help

Caregiving can be overwhelming, but you aren’t alone. The Alzheimer’s Association is here to help.

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