Treat caregivers with these special coupons

Treat caregivers with these special coupons

Caregiving is often a 24/7 job. Cooking, cleaning, running errands, making appointments, providing love and companionship—caregivers do all of this and so much more.
Recognize the challenges and sacrifices of the caregiver in your life by presenting a book of coupons, which entitle the recipient to things like a full day off for “me time” and a home cooked meal, among other little luxuries.

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NIH, NFL team up to explore long-term effects of head injuries

NIH, NFL team up to explore long-term effects of head injuries

The U.S. National Institutes of Health (NIH) and the National Football League (NFL) are teaming up on research into the long-term effects of head injuries and improving concussion diagnosis. The projects will focus on a number of aspects of traumatic brain injury, including how chronic traumatic encephalopathy (CTE) may relate to neurodegenerative disorders like Alzheimer’s disease.

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How can you make a difference today – Alzheimer’s Association

How can you make a difference today – Alzheimer’s Association

As 2013 draws to a close, we’re excited to share a new challenge with you! Longtime supporter Abbe Sue Rubin will donate $10,000 to the Alzheimer’s Association if we can raise that same amount online by December 31, 2013.

I can’t think of a better time to make a donation to the Alzheimer’s Association.

Like so many of us, she knows firsthand the terrible toll Alzheimer’s can take on individuals and families. Her generous gift will support public policy initiatives.

When you make your gift today to this special challenge match, your donation can have twice the impact and support our mission to eliminate Alzheimer’s disease through the advancement of research; to provide and enhance care and support for all affected; and to reduce the risk of dementia through the promotion of brain health.

There are less than two weeks left in 2013 to make a tax-deductible contribution – and your donation can have twice the impact thanks to Abbe’s gift. Don’t let the year end without taking a stand against Alzheimer’s. Please give as generously as you can.

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Ask the Helpline

Ask the Helpline

My father has just been diagnosed, but we’ve been noticing some problems for a while. When does he need to stop driving? And how do we tell him?
A dementia diagnosis does not necessarily mean that driving must stop at once. However, it does mean that at some point in the future, the person with dementia will no longer be able to drive safely.

My father has just been diagnosed, but we’ve been noticing some problems for a while. When does he need to stop driving? And how do we tell him?
A dementia diagnosis does not necessarily mean that driving must stop at once. However, it does mean that at some point in the future, the person with dementia will no longer be able to drive safely. Driving is a complex task that depends upon our sensory, physical, and cognitive abilities. As dementia progresses, all of these abilities are impaired.
Conversations about driving can be very challenging. We live in a world where driving and independence are practically synonymous. Having to give up driving means facing the losses that come with dementia and this can be difficult for everyone involved.
If the person with dementia is diagnosed early, he may be aware of his diagnosis and understand the impact it will eventually have on his ability to drive safely. Ideally, he should participate in conversations and decisions regarding driving. However, if he cannot or will not, caregivers must prepare for a time when he will not be able to drive, and intervene to keep him and others safe.
Assessing safety

Because individuals with dementia can lack self-awareness, it is critical that someone else assess driving ability. One way to do this is to observe the person with dementia while driving, either as a passenger or by following them. Some warning signs include:

• Getting lost
• Forgetting the destination during the trip
• Failing to observe traffic signs
• Making slow or poor decisions in traffic
• Becoming angry or confused while driving
• Hitting curbs
• Confusing the brake and gas pedals
• Multiple accidents or near misses
Having the discussion

Be sure to approach the topic with empathy. Also, appeal to the person’s sense of responsibility: no one wants to be responsible for harming others on the road. It may be helpful to reinforce medical diagnoses and directives; sometimes people will respond to a doctor as an authority figure when they won’t listen to their children or spouse. Some options for this include:
• Illinois driver’s license renewal: road test required over age 75
• Comprehensive driver evaluation. You can search for a diagnostic driving evaluation center at our community resource finder.
• A “Do not Drive” prescription from a doctor
• Physician report to Secretary of State
However, keep in mind that even loss of a driver’s license may not be enough to keep the person with dementia off the road if he still has access to a car and is determined to drive. He may not remember that he has been told by his doctor not to drive or that he has lost his license.
Alternate transportation

• You will want to explore alternative transportation options. Some resources include:
• Family/friends/neighbors/religious community: Coordinate with Care Team Calendar.
• Volunteer driver: National Volunteer Caregiving Network
• City or township programs such as paratransit or taxi vouchers for seniors or disabled persons. Click here to access these via your local Area Agency on Aging or dial 1.800.252.8966
Deterring the Determined Driver

Sometimes you may need to actively prevent the person with dementia from driving. This can be very difficult. Children find it emotionally challenging to start exerting authority over their parents, and spouses don’t want to make their loved one angry by insisting they stop driving. However, no one wants the person with dementia to injure or kill themselves or someone else. Here are some ways to prevent an unsafe driver from getting on the road:
• Distract and re-direct: “We’ll go visit your friend next week when they’re back from vacation. Can you come help me with…”
• Offer to drive: “It’s my turn to drive today.”
• Restrict access to car keys.
• Disable the car.
• Remove or sell the car.
Giving up driving can be a significant loss. Conversations about driving are one of the difficult situations in dementia care, especially because the safest solution may not be the choice that makes an affected loved one happy. The Alzheimer’s Association 24/7 Helpline is here to talk you through this and provide support, resources and advice.
Click here to learn more about dementia and driving, including videos of four families having this discussion.

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Holiday travel may be overwhelming for someone with Alzheimer’s

Holiday travel may be overwhelming for someone with Alzheimer’s

When taking a trip to visit friends and family over the holidays, it’s important to consider the difficulties and benefits of travel for a person with Alzheimer’s or another dementia. In the early stages, a person may still enjoy traveling; as the disease progresses, travel may become too overwhelming.

If a person has Alzheimer’s or other dementia, it doesn’t mean he or she can no longer participate in meaningful activities such as travel; but it does require planning to ensure safety and enjoyment for everyone.

Deciding to travel

Whether taking a short trip to see friends and family or traveling a far distance for vacation, it’s important to consider the difficulties and benefits of travel for a person with dementia. In the early stages of dementia, a person may still enjoy traveling. As the disease progresses, travel may become too overwhelming.

When you take into account the needs, abilities, safety and preferences of the person with dementia, what’s the best mode of travel? Consider the following:

  • Go with the option that provides the most comfort and the least anxiety.
  • Stick with the familiar. Travel to known destinations that involve as few changes in daily routine as possible. Try to visit places that were familiar before the onset of dementia.
  • Keep in mind that there may come a time when traveling is too disorienting or stressful for the person with dementia.
Tips for a safe trip
  • Changes in environment can trigger wandering. Even for a person in the early stages, new environments may be more difficult to navigate. Keep the person safe by taking precautions, such as enrolling in MedicAlert® + Alzheimer’s Association Safe Return®, Comfort Zone® or Comfort Zone Check-In®.

    If you will be at a location for an extended period of time, consider contacting the local Alzheimer’s Association for resources and support.
    Find a chapter anywhere in the United States.

  • Have a bag of essentials with you at all times that includes medications, your travel itinerary, a comfortable change of clothes, water, snacks and activities.
  • Pack necessary medications, up-to-date medical information, a list of emergency contacts and photocopies of important legal documents.
  • Create an itinerary that includes details about each destination. Give copies to emergency contacts at home. Keep a copy of your itinerary with you at all times.
  • If you will be staying in a hotel, inform the staff ahead of time of your specific needs so they can be prepared to assist you.
  • Travel during the time of day that is best for the person with dementia.

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Documents to Take with You when Traveling

  • Doctors’ names and contact information
  • A list of current medications and dosages
  • Phone numbers and addresses of the local police and fire departments, hospitals and poison control
  • A list of food or drug allergies
  • Copies of legal papers (living will, advanced directives, power of attorney, etc.)
  • Names and contact information of friends and family members to call in case of an emergency
  • Insurance information (policy number, member name)
Air travel

From our Blog


The Love Story of a Football Wife Who Tackled Dementia
Sylvia Mackey was a caregiver for husband and football legend John Mackey, who had dementia. Here, she tells her story and details the obstacles she faced and overcame when traveling to the Super Bowl each year.Read more

Traveling in airports requires plenty of focus and attention. At times, the level of activity can be distracting, overwhelming or difficult to understand for someone with dementia. If you are traveling by plane, keep the following in mind:

  • Avoid scheduling flights that require tight connections. Ask about airport escort services that can help you get from place to place.
  • Inform the airline and airport medical service department ahead of time of your needs to make sure they can help you. Most airlines will work with you to accommodate special needs.
  • If appropriate, tell airport employees, screeners and in-flight crew members that you are traveling with someone who has dementia.
  • Even if walking is not difficult, consider requesting a wheelchair so that an airport employee is assigned to help you get from place to place.
  • Allow for extra time.

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