Advocate Spotlight: Robin Zielin – Alzheimer’s Association
The Alzheimer’s Association, Greater Illinois Chapter invites you to become an Alzheimer’s Advocate, and to draw critical attention to the advancement of Alzheimer’s public policies at the 2017 Illinois Action Summit. Be a catalyst for change in Illinois and ensure that the needs of Alzheimer’s patients, family members, and caregivers are addressed. In this article, we feature one of our Illinois Action Summit participants, Robin Zielin.
What led to your involvement with the Alzheimer’s Association?
My mother was diagnosed with Alzheimer’s in 2010 and died from the disease in a memory care facility in July of 2015. I learned about Alzheimer’s Association as a resource for information and guidance soon after my mother’s diagnosis. It really helped to have access to the articles online, the 24-hour helpline and knowing there were others struggling with the emotional side of things as well as the physical aspects.
How long have you been an Alzheimer’s advocate?
This is my second year taking part in the Illinois Action Summit and my fourth year in the Walk to End Alzheimer’s. Last year was my first time participating in the Action Summit and it actually felt a bit chaotic. Both the House and the Senate were actively in session during our visit so it was a little difficult to get the legislators to come out and meet us. While I didn’t get to speak with my Senator that day, I did speak with another Senator and gave her the ‘elevator pitch’ on the issues. It was really quite exhilarating!
Why the Illinois Action Summit?
Our legislators are elected to represent us and the issues we, their constituents, care about. I feel it’s essential to inform lawmakers about legislation coming up for a vote they may not have had time to read or research. By attending the Summit, I can actively show my support for issues and ensure they know it’s important because we go the extra mile to be in Springfield.
Why is being an Alzheimer’s Advocate important to you?
My mother’s fight against the disease is over, but there are so many others still in this heartbreaking fight. My work as an advocate is to be a voice for them, to hopefully make it easier for another family facing a difficult road ahead.
Why should others advocate for Alzheimer’s disease?
Being an Alzheimer’s Advocate gives you the ability to make a difference, to take action and help others struggling with the physical, financial and emotional effects of this disease. One of the unexpected benefits is connecting with others who understand the struggles you and your family are tackling and the potential to benefit from their experiences.
Let’s work to make Illinois a dementia-capable state!
Register today for the 2017 Illinois Action Summit.