Meet three Alz Stars runners whose stories will motivate you this winter

Meet three Alz Stars runners whose stories will motivate you this winter

http://www.alzheimers-illinois.org/enewsletter/january2013/alz_stars.asp

It is January. A month where we ambitiously declare that we’re going to start managing our finances more responsibly, pursue a career we’re passionate about or take on something that seems nearly impossible like a marathon.
It is a supreme act of will power to train and complete a marathon. The effort requires months of rigorous training, steely, unyielding determination and sacrifices of all kinds. Some might say it takes all of one’s mind, body and soul.

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It is January. A month where we ambitiously declare that we’re going to start managing our finances more responsibly, pursue a career we’re passionate about or take on something that seems nearly impossible like a marathon.
It is a supreme act of will power to train and complete a marathon. The effort requires months of rigorous training, steely, unyielding determination and sacrifices of all kinds. Some might say it takes all of one’s mind, body and soul.
Chuck Aron is no stranger to the demands of marathons, specifically the Bank of America Chicago Marathon held in October, and not only does he give it all of his mind, body 
and soul, but he raises money to help others who need a   
supportive hand with theirs.
For several years, Aron has raised money for the mind by participating on the Alz Stars team, an endurance program to benefit the care, support and research efforts of the Alzheimer’s Association.® The cause is especially important to the Chicago resident who lost his brother-in-law, Paul Bracken, at the age of 58 to the disease.
For the body, Aron solicits funds for the American Cancer Society and for the soul, there are contributions to the Greater Chicago Food Depository.
“I’m going to keep running the marathons for as long as I can or until there’s a cure,” said the 66-year-old, who has even run with a torn meniscus. He added that friends have come to expect his annual letters asking for contributions.
Aron has run 10 races since 2004, and in that time has raised more than $90,000 for Alzheimer’s care, support and research. His total of $8,238 for the year surpassed his $7,500 goal.
Tim Farley

A Hawaiian shirt flapping in the wind – that’s what you’ll see when Tim Farley participates in the Bank of America Chicago Marathon as a member of the Alz Stars team. Farley, who grew up in DeKalb and still has family in the state, now lives in Savannah and runs with his brother, Jim Farley, to raise money for the Alzheimer’s Association.
“Our father has Alzheimer’s — 10 years he’s been battling it and my brother’s mother-in-law passed away from it,” said Farley, who raised $7,205 in 2012, beating his $5,000 goal.
Running a marathon was on Farley’s bucket list and something he achieved for his 40th birthday. Now, it’s eight years later, and he’s found he doesn’t need to train much any longer.
“It’s truly more of a mental game than a physical one,” said Farley, laughingly admitting to even stopping for a beer or two along the way to the finish line.
Farley is actively involved with the Alzheimer’s Association in Georgia, and said he’s encouraged by what he’s seen in the years since his father, John “Jack” Farley, was diagnosed.
“The number of people who are open to expressing what they’re going through has seemed to grow,” Farley said.
Lisa Dooley

The day of the Chicago Marathon, October 7, 2012, marked the first time Lisa Dooley, a life-long runner, took on the grueling 26.2 miles.
A full-time working mother of twin 5-year-old girls, Dooley sometimes had to get on the treadmill at 9 p.m. to keep to her training schedule, but she never missed a run.
“I’m really motivated and disciplined,” said Dooley, who even suffered a dislocated hip at birth and had to endure several hip surgeries as a small child.
Dooley signed up for the Alz Stars team because her grandmother, Loretta Werderits, was living with Alzheimer’s disease. But, for several months, she kept it from loved ones.
“I sat on it for months. I was thinking ‘What if I don’t finish?’ or ‘What if I get hurt?’” she recalled. “Then my grandma passed away in July and I spoke at the funeral and told my family I was raising money through Alz Stars.”
Dooley went on to raise $3,025, doubling her goal of $1,500.
“My mom gave me my grandma’s treasured ‘L’ pin because she was Loretta and I’m Lisa,” said Dooley, who pinned it to her shirt during the race. “I hit a crazy wall at mile 23 and I felt like she was there with me.”
These runners are just three of the 144 that comprised the 2012 Alz Stars team, and the Alzheimer’s Association is incredibly grateful to each and every person who put in the hours to train and raise money for the fight against this terrible disease.
To learn more about participating in future events, such as the
Bank of America Shamrock Shuffle 8K or MB Financial Bank Bike the Drive, contact Ellie Simpson, Manager of Athletic Events, at 847.324.0378 or esimpson@alz.org.

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Access Alzheimer’s information on the go with our new mobile website

Access Alzheimer’s information on the go with our new mobile website

The Alzheimer’s Association® Greater Illinois Chapter is excited to announce our new mobile website. Using a smartphone or tablet, it’s easier than ever to access resources for caregivers, education program listings and locations for support groups.
Walk to End Alzheimer’s details and information about volunteer and advocacy opportunities among others are also available on the go.
Type alzil.mobi into your smartphone or tablet and browse our mobile website today.

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Empowerment through science: How one woman is taking charge with TrialMatch®

http://www.alzheimers-illinois.org/enewsletter/january2013/trialmatch.asp

Elizabeth Patterson lived with the early stages of Alzheimer’s disease for several years, but as is the case with all those who develop the disease, her ability to recall and function failed more and more as time went on.
“She started having memories of things that I don’t think ever happened,” said Karen Bush of her mother who passed away in 2009 at the age of 88. “She invented memories and had confusion with reality.”

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Elizabeth Patterson lived with the early stages of Alzheimer’s disease for several years, but as is the case with all those who develop the disease, her ability to recall and function failed more and more as time went on.
“She started having memories of things that I don’t think ever happened,” said Karen Bush of her mother who passed away in 2009 at the age of 88. “She invented memories and had confusion with reality.”
It was difficult for Patterson’s family to watch her decline.
“It’s so frustrating as a family member to see someone with Alzheimer’s but there’s nothing that could be done to fix it,” the Lake Bluff resident said.
But that inability to ‘fix’ the problem is something Bush is working on. The septuagenarian is currently enrolled in a clinical trial through Rush Alzheimer’s Disease Center. Through clinical trials, researchers test new ways to detect, treat and prevent Alzheimer’s disease and related dementias. Without clinical trials, there can be no new treatments or cures.
The Alzheimer’s Association TrialMatch® is a free service that makes it easy for people with Alzheimer’s, caregivers, families and physicians to locate clinical trials based on personal criteria such as diagnosis and stage of disease as well as location.
“Alzheimer’s Association TrialMatch is a service that truly wants to empower people through providing education and information,” said Arnetti Taylor, associate director of the clinical studies initiative at the Alzheimer’s Association. “TrialMatch is on the frontline of the Alzheimer’s battle. Our specialists experience the anxiety, the hope and the possibilities of potential treatments right along with our constituents. We are there building a relationship with them while holding constituents’ hands through their clinical trials journey with high hopes of eradicating Alzheimer’s disease.”
Through her participation in a clinical trial, Bush has her blood taken and underwent MRIs and CAT Scans. She also completes problems that assess her understanding of spatial relationships and is asked a series of questions and to recall lists of words read aloud to evaluate her cognitive state. As part of the clinical trial, Bush has a study partner — the person is a good friend of her’s — who sees Bush on a regular basis and would be able to let researchers know if her memory was beginning to falter.
“What’s stopping us from developing diagnostics and treatment is not ideas and it’s not even money to a certain extent, it’s really participation in clinical trials,” said Dr. Raj Shah, director of the Memory Clinic at Rush University Alzheimer’s Disease Center. Shah evaluates and treats individuals with memory loss at the clinic as well as out in the community.
Bush, meanwhile, is happy doing her part to make progress in the fight against the disease.
“Like everyone else in my generation, any time we think we forgot something; we wonder ‘Could it be Alzheimer’s?’”
Click here to learn more about TrialMatch.

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A personal challenge; a lasting impression – Alzheimer’s disease

https://act.alz.org/site/Donation2?df_id=16481&16481.donation=form1&JServSessionIdr004=afoay7aqj1.app208b

You often receive updates, offers and even requests for donations from me on behalf of the Alzheimer’s Association. Today I am writing you with a very personal challenge … and a promise.

If you can help us raise $5,000 today, on this, the last day of a huge year of accomplishment toward a world without Alzheimer’s disease, I will match that entire amount. Your support will help us make even more progress in 2013.

This year we launched two new products – Alzheimer’s Navigator and AlzConnected – to help people with Alzheimer’s and their families manage the journey with this devastating disease. These easy-to-use tools complement the thousands of face-to-face support groups and education programs held in communities nationwide. We saw great progress in early diagnosis and the Alzheimer’s Association made our largest grant ever to the Dominantly Inherited Alzheimer’s Network-Therapeutic Trials Unit (DIAN-TTU) to enable the program to move forward more quickly with innovative drug and biomarker trials in people with genetically based, young-onset Alzheimer’s disease. And, with support from more than 500,000 advocates and Association volunteer leadership, we saw the first ever national plan for Alzheimer’s disease published in May.

But our work – your work and my work is not finished. The financial impact of Alzheimer’s on families, the healthcare system, and society is heartbreaking. Your financial generosity and personal commitment inspires me to do whatever I can to support the vision for a world without Alzheimer’s. I promise we will continue to work every single day to find better support, treatment, and ultimately a way to stop the trajectory of Alzheimer’s disease.

This is why I am asking you to consider donating one of the following amounts:

  • $17 for the more than 17 billion hours of unpaid care to those with Alzheimer’s
  • $20 for the more than 5 million people living with Alzheimer’s today and their 15 million caregivers
  • $50 for the 50% of people that have Alzheimer’s but have never received a diagnosis
  • $68 for the every 68 seconds someone in the United States develops Alzheimer’s
  • $200 for the estimated $200 billion spent on Alzheimer’s care this year in the U.S.

It doesn’t just take courage to make progress in the fight against Alzheimer’s. It also takes commitment. All you have to do is take action. Please give generously right now when your dollars can have twice the impact.

Can I please count on you today?

With heartfelt thanks,

Angela Geiger
Angela Geiger
Chief Strategy Officer

P.S. In addition to making a donation to the Alzheimer’s Association today, you can also make a big difference by joining me in becoming a member in our sister organization, the Alzheimer’s Impact Movement (AIM) for only $20. This organization is committed to the same policy goals as the Alzheimer’s Association and uses exciting new tools to leverage the will of our community and the full force of the federal government to overcome the Alzheimer’s crisis.

According to the Internal Revenue Service, contributions to the Alzheimer’s Impact Movement are not deductible as charitable contributions for federal income tax purposes. Membership fees will not be matched.

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