Why I Walk… Leslie’s Story

Why I Walk… Leslie’s Story

“Journey”, it’s quite a word. It has as many twists and turns as a Rand McNally Map. To be honest, I’m not sure where I am on the journey. I am unsure as to where it began and I don’t know when I will reach the final destination. Regardless, I am confident of this, I am not alone.
Known as Sara to others, but to me she is Mom. As I look into her eyes there are times when I know that she is somewhere else. I wonder where she is in her mind’s journey.

“Journey”; it’s quite a word. It has as many twists and turns as a Rand McNally Map. To be honest, I’m not sure where I am on the journey. I am unsure as to where it began and I don’t know when I will reach the final destination. Regardless, I am confident of this, I am not alone.
Known as Sara to others, but to me she is Mom. As I look into her eyes there are times when I know that she is somewhere else. I wonder where she is in her mind’s journey. Is she revisiting her childhood? Is she afraid? Lost? Where is she? I don’t know.
So I’ll walk this year in the Decatur Walk for the one who taught me how to walk. I will place one foot in front of the other. On this journey I will shed more tears, I will laugh, I will sing and I will pray…..and I will be confident of this: that He who began a good work in my mom will be faithful to complete it… (Phil. 6:1)
-Leslie Kent
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B. Smith says she is “doing great” while living with Alzheimer’s

B. Smith says she is “doing great” while living with Alzheimer’s

Model, author, restaurateur and former TV host B. Smith, who was diagnosed with Alzheimer’s four years ago, says that while the disease has taken a toll, she is “doing great.” Smith is hoping that she and her husband, Dan Gasby, can shine a spotlight on the daily challenges faced by caregivers of people with Alzheimer’s.

Iconic model, author, restauranteur and former TV host, B. Smith, who was diagnosed with Alzheimer’s disease four years ago, is hoping that she and her husband, Dan Gasby, can shine a spotlight on the daily challenges faced by caregivers.

On World Alzheimer’s Day, the couple talked with Al Roker and Natalie Morales about how the disease has changed their lives and about the importance of education and recognition for the efforts of caregivers who devote untold hours caring for loved ones.

Though the disease has certainly taken its toll, Smith says she’s “doing great.”

Smith says she still likes to cook. “And I’m making sure that we’re eating well. We’re taking care of ourselves and things like that. So I’m very happy.”

What’s helped Smith the most is being surrounded by loved ones.

“For me it’s all about family,” she says. “I like to be a part of the family and to have us all together. That’s a good thing.”

Gasby attributes much to his wife’s outlook on life.

“She’s a very positive person and we’ve learned to adapt to things that are changing,” he says. “But that doesn’t dampen her spirts.”

As a couple on the frontlines dealing with Alzheimer’s, Smith and Gasby understand all too well how tough it can be. To bring attention to all the other families touched by the disease, they’ve partnered up with the Caregiver Action Network (caregiveraction.org to ask Americans to join in the Twitter#TakeOneMoment campaign, by sharing photos of loved one with Alzheimer’s for awareness day.

And, it turns out, there are some pretty big numbers.

“In fact,” Roker says, “there are 15 million Americans caring for someone with Alzheimer’s disease.”

Those caregivers provided an estimated 17.9 billion hours of unpaid care in 2014, valued at $217.7 billion to patients with Alzheimer’s and other dementias, according to the Alzheimer’s Association. And those numbers are expected only to rise as Baby Boomers age.

“Family is very important,” Gasby says. “And that’s one of the reasons we’re here today. We’re very happy to be partnering with the Caregiver Action Network to celebrate Take One Moment to recognize the people who are out there on the frontlines, the caregivers, and to bring awareness to Alzheimer’s disease and the caregivers in particular. We want them to know that they matter.”

To help with that, Gasby asked that people share a memory or picture of someone they know or knew with Alzheimer’s on Facebook, Twitter, Instagram or Pinterest using #Take1Moment.

More: Owen Wilson on his dad’s decline: That’s ‘the nature of Alzheimer’s’

“By doing so, we’re going to have the Caregiver Action Network give 1,000 thank you meals to people out there who have been on the front lines, the caregivers,” Gasby says.

By talking about their lives since the Alzheimer’s diagnosis, Gasby and Smith hope to educate Americans about living with the disease.

More: Seth Rogen shares his ‘family love story’ and the ravages of Alzheimer’s

“The thing we’ve learned is there’s a journey,” Gasby says. “And you have to be able to adapt.

“It’s the toughest thing I’ve ever had to do. It’s easy to be a boyfriend or a husband or a relative. But to be a caregiver and to watch a person go through and challenge and to help them and to learn the greatest language of all, patience, that’s the toughest thing.”

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New Research Symposium to be held in October

New Research Symposium to be held in October

This Symposium is designed for clinicians, researchers, patients, families and caregivers and professionals in the areas of healthcare, wellness and aging.
World-class researchers have been invited to the conference as our keynote speakers to discuss local, national, and global research with a special focus on translating research into care. Topics include the latest advancements and best practices in genetics, diagnostics, nutrition, exercise and lifestyle, therapeutics, and much more.

Alzheimer’s Association, Greater Illinois Chapter
Annual Research Symposium

FULL-DAY CONFERENCE

Gain knowledge and insights on Alzheimer’s research topics designed to increase awareness and enhance skill sets, with a special focus on translating research into care.

Join us on Friday, October 23, 2015
8:00 a.m. – 3:30 p.m.

Hamburger University and Hyatt Lodge
at McDonald’s University
2175 Jorie Blvd Oak Brook, IL 60523

 

The Alzheimer’s Association is committed to accelerating the global effort to eliminate Alzheimer’s disease. We are the largest, private nonprofit funder of Alzheimer’s research. We believe in the value of collaboration and are willing to imagine a time when we will have disease-modifying treatments, preventive strategies and gold-standard care for all people affected by Alzheimer’s disease.

The Greater Illinois Chapter is fortunate to have a number of the nation’s foremost Alzheimer’s research facilities within its territory. We have worked collaboratively with this talented and dedicated research community in order to plan and educate participants of the Symposium about the latest advances in Alzheimer research.

About the Symposium:
This full-day Symposium will focus on Alzheimer’s research, the leading role of the Alzheimer’s Association in dementia-related research, and the importance of participation in clinical studies. World-class researchers have been invited to the conference as our keynote speakers to discuss local, national, and global research with a special focus on translating research into care. The Greater Illinois Chapter’s Research Engagement Committee has developed topic specific educational sessions on the latest advancements and best practices in genetics, diagnostics, nutrition, exercise and lifestyle, therapeutics, and interventions in caring for an individual with Alzheimer’s. Four continuing education credits/clock hours will be provided for health care professionals.

For more information contact Terrianne Reynolds at 847.324.0371 email treynolds@alz.org or contact Heidi Johnson at 847.324.0393 email hjohnson@alz.org or Trinette Caldwell at 847.933.2413 email tcaldwell@alz.org

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Persona supports the Alzheimer’s Association with charms and a bead inspired by Promise Garden flowers

Persona supports the Alzheimer’s Association with charms and a bead inspired by Promise Garden flowers

First Jewelry, the exclusive distributor of Persona®, has launched its second Alzheimer’s Association Collection of sterling silver charms and a bead, with colors and meaning inspired by Walk to End Alzheimer’s® Promise Garden flowers and featuring a word of encouragement related to Alzheimer’s disease. The charms and bead are available for sale online now at personaworld.com and soon at zales.com. Ten percent of the retail price of each Persona charm and bead sold from the special collection will be donated to the Association.

Persona, a leading brand of sterling silver bead and charm jewelry, supports the fight against Alzheimer’s disease. As part of a philosophy of designing with purpose and supporting the good work of charitable partners, a new Persona Alzheimer’s Association Collection was launched to help raise awareness and funds for the Association. From June 10, 2015 to May 31, 2018, First Jewelry Limited, the exclusive distributor of Persona, will donate 10% of the retail price of the beads and charms, with a minimum commitment of $25,000 annually.

The first three styles of the Persona Alzheimer’s Association collection of sterling silver beads and charms include a silver bead inscribed with “ENDALZ” which features hand-painted enamel and Austrian crystals in a range of rich purple hues; a three-sided silver bead with hand-painted enamel in shades of purple with the inscription “The End of Alzheimer’s Starts with Me”; and a silver charm reading “ENDALZ.” Each item features unique, hand-crafted designs that reflect colors and elements of the Association. Initially, these Persona beads and charms will be available online and later at select jewelry retailers across both the United States and Canada.

Visit personaworld.com/alz to learn more.

Performers take the stage for 9th annual Memory Rock

Performers take the stage for 9th annual Memory Rock

It’s time to rock out with Liquidated Damages joined by Dan Mahoney of Eleven Deep! Join us for the 9th Annual Memory Rock. The event will take place from 6 to 9 p.m. October 29 at Joe’s Sports Bar, 940 W. Weed St., Chicago. Attendees can enjoy draft beer, wine and soft drinks, access to a silent auction and live music. Tickets are $67 in advance $75 at the door. Special group pricing online only 3 tickets for $130.

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