Introducing new peer-to-peer mentoring program for young people

Introducing new peer-to-peer mentoring program for young people

http://www.alzheimers-illinois.org/enewsletter/july2013/pALZ.asp

It was winter of 2011 when Carol Mayer and Leah Drew sat down over tea to talk. The two have a lot in common— both are young professionals living in Chicago — but while, to a passerby, their meeting may have looked like two friends catching up, it was, in fact, something far more serious that brought the women together.

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It was winter of 2011 when Carol Mayer and Leah Drew sat down over tea to talk. The two have a lot in common— both are young professionals living in Chicago — but while, to a passerby, their meeting may have looked like two friends catching up, it was, in fact, something far more serious that brought the women together.
Not long before, Mayer’s mom, Susan, had been diagnosed with primary progressive aphasia. Similar in pathology to Alzheimer’s disease, the neurological syndrome impairs language capabilities and comprehension. Drew’s mother, Lynne, had been diagnosed with young-onset Alzheimer’s disease in 2005. It was Alzheimer’s Association staff that had connected Mayer and Drew so each could speak with someone who was facing a similar experience.
“Our (meeting) had a comforting, albeit very sad, aspect to me. I was able to vent and show some emotion that maybe some other people in my life wouldn’t understand,” Mayer said. “Leah was informative and supportive without being overbearing.”
Drew also appreciated the opportunity to sit down.
“To talk to someone reeling from this diagnosis — I knew exactly what she was going through,” said Drew, who had previously sought out support services but couldn’t relate to other attendees because of a pronounced difference in age. “I knew if (Mayer) was anything like me, she’d have a lot to get off her chest.”
Both women are currently members of the Greater Illinois Chapter Junior Board, which was established in 2011 to raise awareness of Alzheimer’s and related dementias, and to take action through fundraising events, support programs, education and advocacy initiatives. And their connection and camaraderie proved a catalyst for a new service founded by the group of individuals in their 20s and 30s.
A peer-to-peer mentoring program, pALZ provides resources for young professionals facing an Alzheimer’s diagnosis in a relative or loved one.
“The program has been in the works for about a year,” said Drew, adding that other board members embraced the concept from the start.
In the pALZ program, Mentors and Mentees are matched by way of a program liaison who introduces the two. The nature of each relationship is discretionary and Mentors and Mentees may communicate via phone, video chat, text message, email or in person.
In forming the program, the Junior Board recognized the importance of reviewing applications and providing training for those who wished to act as Mentors.
“The training will be an opportunity for the Mentors to engage with one another and share common experiences that will aid them in forming supportive relationships with their Mentees,” said Stephanie Herro, Senior Manager, Support Services. “pALZ Mentors will be trained in techniques similar to those of our support group facilitators, learning about the potential dynamics of a mentoring relationship and how to manage any difficult situations.”
For Drew, it’s really about creating a safe space between two people.
“My parents are both social workers so talking things out is something I really believe in,” she said.
Click here for more information on the pALZ program and how to get involved.

http://www.optimumseniorcare.com/services/alzheimerscare.php

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Volunteer for the Walk to End Alzheimer’s!

Volunteer for the Walk to End Alzheimer’s!

https://www.alzheimers-illinois.org/volunteer/default_ssl.asp

It’s that time of year again, and the Alzheimer’s Association® , Greater Illinois Chapter is currently recruiting volunteers for various job roles at 17 Walk to End Alzheimer’s events throughout our 68-county service area.
As the nation’s largest Alzheimer’s event approaches, we would not be successful without the help of our amazing volunteers who help us move our mission forward.
Our volunteers help with many different aspects of the walk, from event day set-up to informing participants about the Alzheimer’s Association advocacy efforts to guiding walkers along the designated route.

Volunteer today >>

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Illinois residents want increased state funding for Alzheimer’s care: Survey

Illinois residents want increased state funding for Alzheimer’s care: Survey

http://www.alzheimers-illinois.org/survey_results/2013/index.asp

A total of 736 Illinois residents from 64 counties recently participated in an online survey for the state’s Alzheimer’s Disease Plan, and the results are eye-opening.
The findings, which will be shared with the Illinois Department of Public Health, state that fewer than half of all survey respondents were familiar with programs and services offered by the state for those with Alzheimer’s and their families and an overwhelming 85% felt the state should spend more money funding programs that provide Alzheimer’s care.
These results are critical as they will guide recommendations put forth by the state’s Alzheimer’s Disease Advisory Committee. Comprised of Alzheimer’s experts, researchers, physicians and others, the committee is responsible for advising legislators and state agencies on Illinois’ response to the growing health crisis of Alzheimer’s disease.

Download the full report >>

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We need your help

http://www.alzheimers-illinois.org/enewsletter/july2013/advocate.asp

After the July 4th weekend, the Labor, Health and Human Services and Education Subcommittee will determine whether or not it will allocate $100 million in federal funds for Alzheimer’s research, education, outreach and caregiver supports to begin the implementation of the National Alzheimer’s Plan Act (NAPA) in the 2014 budget. We are fortunate to have both our U.S. Senators Dick Durbin and Mark Kirk on that Committee and we need your help to get their support.
Government investment in medical research is a critical step in building a foundation for disease treatments and a cure. For every $27,000 the federal government spends on care for those with Alzheimer’s disease, it only spends $100 on research.

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After the July 4th weekend, the Labor, Health and Human Services and Education Subcommittee will determine whether or not it will allocate $100 million in federal funds for Alzheimer’s research, education, outreach and caregiver supports to begin the implementation of the National Alzheimer’s Plan Act (NAPA) in the 2014 budget. We are fortunate to have both our U.S. Senators Dick Durbin and Mark Kirk on that Committee and we need your help to get their support.
Government investment in medical research is a critical step in building a foundation for disease treatments and a cure. For every $27,000 the federal government spends on care for those with Alzheimer’s disease, it only spends $100 on research. This level of funding is woefully inadequate and does not reflect the escalating national epidemic this disease has become.
Please take a moment today to call 1-800-687-3813 and tell either Senator Dick Durbin (D-IL) or Mark Kirk (R-IL) that smart investments in Alzheimer’s disease now will not only save millions of lives in the future, but will be key to addressing our nation’s fiscal challenges. After speaking with the first senator’s office, please dial 1-800-687-3813 a second time to speak with the other Illinois lawmaker.
Message to senators:
“Alzheimer’s disease is the most expensive disease facing our nation today and is set to increase like no other unless bold action is taken. I am calling today to ask for your support of $100 million for Alzheimer’s research and care to begin the implementation of the National Alzheimer’s Plan Act, a bill you have supported.
I understand that as a member of the Senate Labor-HHS Subcommittee, you see a lot of issues in need of government funding, but the chronic underinvestment of Alzheimer’s disease research will pose enormous problems to our healthcare system in the future if action is not taken NOW.
Our country spends more than $203 billion per year caring for those with Alzheimer’s. These numbers are expected to skyrocket to more than $1.2 trillion by 2050. We can also measure costs in diminished personal health, increased stress and even bankruptcy for those five million people living with the disease and the more than 15 million caregivers in the U.S.
As an Alzheimer’s Association Advocate in Illinois, I know this disease and I know our nation must do more. It is not only a moral imperative, but sound fiscal policy. We must address Alzheimer’s. We simply cannot afford to wait any longer. As you have been an advocate for the Alzheimer’s community in the past, I hope I can count on your support now!”

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Our 24/7 Helpline is there for you when you need it

Our 24/7 Helpline is there for you when you need it

http://www.alz.org/we_can_help_24_7_helpline.asp?WT.mc_id=enews2013_06_26

The Alzheimer’s Association 24/7 Helpline provides reliable information and support to everyone affected by Alzheimer’s. Call us toll-free anytime, day or night, at 800.272.3900 for confidential care consultation and help with issues related to the disease that families face every day.
Learn more about our 24/7 Helpline >>

The Alzheimer’s Association 24/7 Helpline provides reliable information and support to all those who need assistance. Call us toll-free anytime day or night at 1.800.272.3900.

Our 24/7 Helpline serves people with memory loss, caregivers, health care professionals and the public.

Our highly trained and knowledgeable staff can help you with:

  • Understanding memory loss, dementia and Alzheimer’s
  • Medications and other treatment options
  • General information about aging and brain health
  • Skills to provide quality care and to find the best care from professionals
  • Legal, financial and living-arrangement decisions

Our 24/7 Helpline also features:
  • Confidential care consultation provided by master’s level clinicians who can help with decision-making support, crisis assistance and education on issues families face every day
  • Help in a caller’s preferred language using our translation service that features over 170 languages and dialects
  • Referrals to local community programs, services and ongoing support

Call us 24/7: 1.800.272.3900
TDD: 1.866.403.3073

Note: Our Helpline staff does not perform diagnosis. If you or someone you care for is having memory problems, please see your doctor.
The 24/7 Helpline is supported in part by a grant from the Administration on Aging, U.S. Department of Health and Human Services.

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