We’re in the fight against Alzheimer’s disease together – Alzheimer’s disease

We’re in the fight against Alzheimer’s disease together

Meghan Blenker’s mother was diagnosed with younger-onset Alzheimer’s disease in September 2011. It took Meghan a long time to accept the “new version” of her mom, but she decided that since she can’t change her diagnosis, she would “fight like crazy” to help fight the disease for future generations.

Four years ago, Mom quit her job so that she could come help me with my twin boys after they were born. I was an exhausted first-time mom who had no clue what I was doing. It was a huge relief to have her by my side during that time.

I started to notice little things about Mom that were different; rather than read too much into anything, I figured that we were both just exhausted. Then the little things started to happen more often. After many doctor’s appointments and tests, my parents visited the Mayo Clinic. It was there, in September of 2011, that my mom was diagnosed with early-onset Alzheimer’s disease at the age of 59.

I was stunned, paralyzed with fear. People that young didn’t get Alzheimer’s, did they? Would she wake up and just not know me? What is Alzheimer’s, really?  Now what? What do we do?

These were all questions that went through my head. To be honest, they still do. I lived in denial for a long time, doing more research than I knew what to do with. The doctors were wrong, I thought. Some days she seems fine!

It took me a long time to accept the “new version” of Mom. I would get so frustrated, not knowing how to comprehend the disease. I finally sat down with her one day after we put the boys down for a nap, and I asked her what it was like. I wanted to know. I wanted to understand.

She tried as best as she could to explain her thoughts and feelings to me. We cried a lot; we still cry a lot. My mom is my best friend, and her diagnosis has been a long slow process for me. I knew then that I needed to do something to fight for Mom, and fight so I don’t have to live with this disease myself.  I needed to find a way to deal with what was happening and to surround myself with people that understood.

Since I can’t change Mom’s diagnosis, I decided to fight like crazy to change it for someone else.

This last weekend was my second time walking in the Walk to End Alzheimer’s in St. Cloud, Minnesota. Joining Walk to End Alzheimer’s is about more than just raising money for me. While it’s so important to fund research that leads to a cure, my biggest mission is to spread awareness. I want to educate people about what Alzheimer’s really is, and how the ability to complete daily tasks that so many people – including me –take for granted are a huge struggle for my mom and so many others with the disease.  Connecting with others in our community at Walk who understand what we are going through is so comforting, and uniting to make a difference is such a great feeling! Being involved with Walk to End Alzheimer’s has been very therapeutic for me, because I know I am working hard to make a difference. I also know my mom is proud and grateful for what I am doing.

Our family has always been very close-knit; while it’s not always easy, we try to maintain traditions and create new memories, because we are in this together. We understand how each other feels. We are going to fight endlessly so that others don’t have to slowly lose their mother the way I am. This is not a disease that should be hidden or kept quiet. Alzheimer’s is taking over our population, and people need to know what’s happening. We need to talk about this disease. We need to help educate people. We need to Walk.

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Savvy caregiver classes – Alzheimer’s

Savvy caregiver classes – Alzheimer’s

Are you a caregiver for a family member who has Alzheimer’s disease or another, related dementia? Does that person live at home? Are you looking for ways to increase your knowledge and confidence in this role? This program is designed for family caregivers of individuals with Alzheimer’s who continue to live at home (not in a residential care setting). Register today.

Are you a caregiver for a family member who has Alzheimer’s disease or another, related dementia? Does that person live at home? Are you looking for ways to increase your knowledge and confidence in this role?
What is the Savvy Caregiver?
This program is designed to equip family members and others for the caregiving role. Developed by the University of Minnesota, the classes will help you gain:
• A better understanding of the disease
• The skills to assess the abilities of the person with dementia
• The confidence to set and alter caregiving goals
• Strategies to manage the day-to-day care of the person with dementia, including personal care
• The skills to take better care of yourself
• Tips on how to build a positive partnership with healthcare professionals
Class information:
Savvy Caregiver is designed for family caregivers of individuals with Alzheimer’s who continue to live at home (not in a residential care setting). Classes meet for six consecutive weeks, for two hours each.

Cost:
Classes are offered free of charge through an Alzheimer’s Disease Supportive Service Program (ADSSP) grant from the Administration for Community Living.

Upcoming classes:
Join us at one of our upcoming classes. Click below for more details.

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Enter for a chance to be Seth Rogen’s guest at Hilarity for Charity

Enter for a chance to be Seth Rogen’s guest at Hilarity for Charity

Lauren Miller Rogen and Seth Rogen will continue to use hope and humor to inspire change and raise awareness of Alzheimer’s disease among millennials with their fourth annual Hilarity for Charity Variety Show on Oct. 17 in Los Angeles. This year’s event is the James Franco’s Bar Mitzvah at the Variety Show, with headliner Miley Cyrus — and you can enter for a chance to be Seth’s guest. Hilarity for Charity was established in partnership with the Alzheimer’s Association.

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Leading researcher to speak at Symposium – Alzheimer’s Association

Leading researcher to speak at Symposium

Dr. Reisa Sperling, clinical neurologist and neuroimaging researcher, is a leading force in the movement towards earlier diagnosis and treatment of Alzheimer’s disease. She will be the opening keynote speaker for the Alzheimer’s Association Annual Research Symposium on Friday, October 23.

Dr. Reisa Sperling, clinical neurologist and neuroimaging researcher, is a leading force in the movement towards earlier diagnosis and treatment of Alzheimer’s disease. She will be the opening keynote speaker for the Alzheimer’s Association Annual Research Symposium on Friday, October 23.
Dr. Sperling is the recipient of the Alzheimer’s Association’s largest ever research grant award – $8 million over four years – to support the Longitudinal Evaluation of Amyloid Risk and Neurodegeneration (LEARN) study as a companion study to the Anti-Amyloid Treatment in Asymptomatic Alzheimer’s Disease (A4) Study, a pioneering Alzheimer’s prevention trial that started in 2014.

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Family with history of rare Alzheimer’s disease gene hopes for a cure

Family with history of rare Alzheimer’s disease gene hopes for a cure

Marty Reiswig’s family has history of a rare, inherited form of early-onset Alzheimer’s disease. He’s taking part in the Dominantly Inherited Alzheimer Network prevention study, primarily funded by the National Institutes of Health and the Alzheimer’s Association, which recently showed that brain scans can pick up changes 20 years before the first symptoms appear.

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