Efforts to keep mother with Alzheimer’s disease engaged have an effect – Alzheimer’s

Efforts to keep mother with Alzheimer’s disease engaged have an effect – Alzheimer’s

Miriam Green writes a weekly blog that chronicles her mother’s battle with Alzheimer’s through prose, poetry and recipes. She says that while her mother sits on the sidelines for most conversations as her abilities decline, she will suddenly enter the fray with a pointed comm

Was I there, too?” Mom asks as my dad tells us about a concert they attended Monday night.

“Of course,” he responds.

“I don’t remember,” Mom replies. “I don’t even know if I’m here or there.”

We laugh, because in context, it’s funny. What it means, however, is that Mom is aware of her memory loss, of her dislocation from time, of her inability to live beyond the moment.

We’ve accepted this about her. And in fact, as Mom’s abilities decline, some things are easier. Mom doesn’t fight me anymore when I need to cut her nails. She willingly holds hands when we cross the street. And, whereas before she rejected sandwiches for lunch, she happily eats them because we now cut them into bite-sized bits she can eat with a fork.

What remains a mystery is how Mom, who sits on the sidelines for most conversations, suddenly enters the fray with a zinging comment. Here’s an example from this afternoon.

As most of their bills are in Hebrew, Daddy and I have taken to going over them together to make sure he understands them. He has a pile of papers waiting for me when I get there, and as we sift through them, I notice that one whole stack is not for him. The address is right, but the name on the letter does not correspond to anyone in their apartment. When we finally decipher the last name (Hebrew is written without any vowels, so it is sometimes a guessing game as to how to pronounce words), Daddy realizes the papers are for their upstairs neighbors, the Pe’er family.

“I think they’ve both died,” Daddy says, “although, maybe she’s still alive.”

And then Mom, transliterating from Hebrew to make a joke: “What a pair they are.”

Zing.

Mom’s brain is functioning.

We laugh long and hard over that joke. It is a small celebration of her vitality and it makes us feel as if our efforts to keep her active and engaged do have an effect.

As I gather my things to head home, Mom tells me she’ll miss me. “I’m like a yo-yo,” I say. “I’m leaving now, but I keep coming back.”

“But when will I see you?”

“I’ll visit next week,” I promise. Mom is still with us. I want to experience that for as long as I can.

The thing about broccoli is that it’s good brain food. The broccoli kugel featured here is in honor of Mom’s phenomenal brain.

Broccoli Kugel

If you’re not overly fond of broccoli, you can substitute almost any other vegetable—cauliflower, squash and carrots, spinach, even cabbage—and still create a hearty vegetable side dish. My favorite: broccoli. This works with fresh broccoli, too.

800 grams (1.7 pounds) frozen thawed broccoli, chopped

1 large onion, chopped

3-4 cloves garlic

4 eggs

4 Tbsp mayonnaise

1 Tsp mustard

4 Tbsp flour

Salt and pepper to taste

Paprika to sprinkle on top

Directions:

Sauté onions and garlic until they begin to brown. Let cool. In a large bowl, mix eggs, flour, mustard and mayonnaise, salt and pepper. Add broccoli and onion mixture. Pour into a small casserole dish and sprinkle with paprika. Bake at 350° for 40 minutes or until browned on sides and top.

About the Author: Miriam Green writes a weekly blog at thelostkichen.org that chronicles through prose, poetry and recipes her mother’s battle with Alzheimer’s.  Her unpublished cookbook, “The Lost Kitchen: An Alzheimer’s Memoir and Cookbook” is filled with advice for the novice cook, easy and elegant recipes and home-spun caregiver advice. Her poem, “Questions My Mother Asked, Answers My Father Gave Her,” won the 2013 Reuben Rose Poetry prize. Miriam is a 20-year resident of Beer Sheva, Israel, and a mother of three.

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9 opportunities to learn during February – Alzheimer’s Disease

9 opportunities to learn during February – Alzheimer’s Disease

If you are curious about memory loss, look at The Basics: Memory Loss, Dementia and Alzheimer’s Disease. If you need specific knowledge or just something to make your life easier, try Learning to Connect, Healthy Habits for a Healthier You or learn about Caregiver Stress: Relief, Acceptance and Empowerment. No matter where you are in the journey we have a program that will help.

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There are currently 45 education program events listed in our database. To view and register for our events, use the search tool below.

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Know the 10 Signs: Early Detection Matters

The Basics: Memory Loss, Dementia and Alzheimer’s Disease

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Learning to Connect: Relating to the Person with Alzheimer’s

Living with Alzheimer’s: For Middle-Stage Caregivers

Caregiver Stress: Relief, Acceptance and Empowerment

Understanding Early Memory Loss

Dementia Conversations

Healthy Habits for a Healthier You

Alzheimer’s Research: Get Informed, Get Involved

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Bride holds wedding reception at mother’s Alzheimer’s care facility

Bride holds wedding reception at mother’s Alzheimer’s care facility

As an only child whose mother is in the late stages of Alzheimer’s disease, Julia Napolitano wasn’t prepared to experience her wedding day without her mom by her side. So Napolitano saw only one option: After the ceremony at a local church, she would bring the celebration to her mother.

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Sign up for February’s audio conference – Alzheimer’s Association

Sign up for February’s audio conference – Alzheimer’s Association

Join us on February 9 from noon to 1 p.m. for an audio conference on, Anxiety, Aggression and Alzheimer’s: Effective Strategies For Difficult Times.
Anxiety is one of the greatest challenges of Alzheimer’s disease. This can cause agitation and, in some cases, even aggressive behavior. Join us as we examine factors that contribute to agitation, and learn practical steps to lessen anxiety and promote a sense of wellbeing.

Educational Programs by Phone

Cost: None.

Registration
Register online below or to register by mail or fax, click here to download form.

Dates and time: 12:00 p.m. – 1:00 p.m.

Program

Day

Register

Anxiety, Aggression and Alzheimer’s: Effective Strategies For Difficult Times
Tuesday, February 9, 2016
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Sundowning, Sleeplessness and Alzheimer’s: How To Cope in the Evening
Tuesday, March 8, 2016
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Minds in Motion: What’s The Best Way To Exercise Your Brain?
Tuesday, April 12, 2016
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Making the Move: Choosing a Nursing Home, Alzheimer’s Unit or Assisted Living Facility
Tuesday, May 10, 2016
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Successful Daily Plans for a Person With Alzheimer’s disease
Tuesday, June 14, 2016
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Listen to past Audio Conferences

Program and Date

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Paying For Alzheimer’s Care: What Resources are Available?
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“Overwhelmed? Run, Don’t Walk to Get Help Now!”
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Tune In to Music: It is a Powerful Tool

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Specific Strategies You Can Use Today for Helping People with Memory Loss
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Description:
Are you too busy to attend an in-person education program? Our Educational Program by Phone are designed for busy people who aren’t able to attend a program outside of their home or office. Registration is easy–call or click (see below) and you will receive a toll free number to call, and materials to follow along during the program. Call from your home, office, or car. You can listen in, or if you’d like, you can even ask questions of our expert speakers.

Anxiety, Aggression & Alzheimer’s: Effective Strategies For Difficult Times
Kathy Rhoads, MSW, LCSW
Owner, Circle of Friends Adult Day Center
Anxiety is one of the greatest challenges of Alzheimer’s disease. This can cause agitation and, in some cases, even aggressive behavior. Join us as we examine factors that contribute to agitation, and learn practical steps to lessen anxiety and promote a sense of wellbeing.

Sundowning, Sleeplessness & Alzheimer’s: How To Cope in the Evening
Sue Sklar, Manager, Education & Outreach
Alzheimer’s Association, Greater Illinois Chapter
Individuals with Alzheimer’s disease can not only have a tough time making it through the day, but the nights can be especially challenging. Day and night can become confused, and late afternoons can be difficult due to a variety of contributing factors. We will look at those factors and discuss effective strategies for dealing with late day confusion, lethargy and sleeplessness.

Minds in Motion: What’s The Best Way To Exercise Your Brain?
Sandy Burgener, PhD, RN, FAAN
Associate Professor Emerita, University of Illinois
There is a growing body of evidence that shows the incredibly positive impact certain physical activities have on brain health. The great news is that the impact is positive for both persons with dementia and those who are in early cognitive decline. Join us for this important audio conference and learn which types of physical activity show the most promise for supporting brain health.

Making the Move: Choosing a Nursing Home, Alzheimer’s Unit or Assisted Living Facility
Lee Moriarty, CTRS ,
Illinois Pioneer Coalition Founding Board Member and
Consumer Project Manager
Moving our loved ones to a residential facility can be one of the hardest decisions we are faced with. Safety, affordability, quality care, fun and friendship all factor into this important decision. Join us to learn a step by step decision-making process, and receive a workbook that will help guide you through this transition.

Successful Daily Plans for a Person With Alzheimer’s disease
Hadi Pagonis, Manager, Education & Outreach
Alzheimer’s Association, Greater Illinois Chapter
If you want to hit a home run when caring for a person with memory loss, it helps to have a game plan that is heavily focused on activities. Being an arm chair quarterback and saying, “Hey, why don’t you work on your crafts now?” just won’t work. Managing our energy while helping the person with memory loss to be actively engaged will bring satisfaction and fun to all. Join us to score some strategies for fun!

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An accurate Alzheimer’s disease diagnosis can bring hope for living your best life

An accurate Alzheimer’s disease diagnosis can bring hope for living your best life

More than 5 million Americans have Alzheimer’s, including approximately 200,000 people under 65 who have the younger-onset form of the disease. A diagnosis can bring fear of what will happen as Alzheimer’s progresses, but as former Alzheimer’s Association National Early-Stage Advisor Miriam Marquez writes, “There’s still so much you can do if you’re living for the best you today and not trying to measure up to what you did 25 years ago or even five years ago.”

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